We took "O" to Texas Children's on Wednesday for his appointment. His platelets were down again from 263,000 last week to 25,000 this week. To say that we were disappointed is a huge understatement. My daughter is devastated. She was so sure that this was over and was making plans to send him back to daycare and get back to life as usual, not having to hold her breath over every step he took and every little spill and bump, wondering if it would mean bruises that would send him back to the hospital for more infusions. But, alas, this is not to be, not yet, anyway. So, we continue to watch over him, trying to keep him from jumping or falling off the couch or any of his toys, or bumping his little head as he climbs out from under the coffee table where he loves to play with his little cars. We try to keep him from hitting his head against the wall and the back of the couch and his highchair and everything else. He's at that stage where he wants to throw his head back all the time and, of course, when you tell him not to, he does it more. He also hits his head on the floor to throw a tantrum, not hard, but it doesn't take much to bruise when his platelets are low. So, now, he's back on prednisone to try to keep them from getting too low, but we'll end up back at the clinic or the hospital in a few days or a week for another infusion. He goes to the pediatrician on Tuesday for bloodwork, if he makes it until then. So, I put my life on hold, not knowing when I may have to leave to go there at a moment's notice. Please keep my "O" in your prayers. I'll let you know how he's doing.
