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I know how hard it is having a chronic disease...Everyone is struggling...Please any suggestions to help this group get going again would be appreciated...I have nothing to add at the moment...

Huggles to you all and I pray you have a painless and a Happy Summer.

Hello fellow pain sufferers, I am sorry that I have not be able to contribute anything to the web site. However it has been a very ruff month, as you are all well aware of it seems that if you have several differant diseases that if one starts to flare the rest have to follow suit just to improve your day. I had been in remission with the RA, even though I was dealing with other medical problems, Unfortunatley the RA has returned with a vengense trying to cause the greatest pain and doing some major damge. I pray that you are all doing well. Keep your chin up and when the pain gets to the point that you feel like throwing in the towel, remember we are all here for each other.

Thanks for letting me ramble on, and may you all have a great hollidayl

Deb

I have several things that I use to help me on days when the pain starts to take over my life, and I wondered if others in this group has found ways to help them. So consider this a chain note, and she how many ways we might help ouselves.

1. In my case I am CAPTAIN of my health care programs.

2. I try to do some isometric excersises everyday. Leg lifts when laying in bed, even if I have to use my cane to get the leg up.

3. I do pain tracking, I found charts on line and I map out my pain where, intensity and what I was doing when it started, what made it feel better.

4. I have my fibro survival kit.

Ok thats is my contributions, I also thought that thtis would be a good way to get to know each other.

Hoping you are having a low pain day, and resting like babyies

Gluten and dairy intolerance is a major source of chronic disease. For those of you who don't know this then it might be a game changer.

Ask your Doctor to have you tested.

over the last six months I have found out how lucky I was to have had the same doctor since 1983, unfortunately my doctor is very ill and has been out for the last five month, and he may never be well enough to return to work. Dr . O understood pain, because he lived in that world also. Over the year through trial and errors we found out that I can take three pain meds. Darvecett n 100's, Demerol, and Delada’s(with four benedrly). Now that I am having to find my a new primary care doctor, none of them seem to understand the pain that I live in constantly. So without proper pain management, my body is not only racked in constant sever pain, but my blood pressure that averaged 130/72 has gone up as high as 220/101. I can’t sleep and when I do I wake myself up crying and screaming for my Mother (died in 1990). The pain has reached the point beyond excruciating to terrifying because of the thought that I have been thinking. I don’t want to live a life where the only thing I can do is cry, and the slightest physical exertion makes the pain beyond believe. I just don’t know what to do. I on the advantage program, but what they can do is limited, I also have been doing physical therapy to try and keep my body from degenerating any more, and I have a nurse that comes out once a week. They have tried to talk to the doctor I found and thought he might be a good one, a big mistake. I just don’t know what to do, or where to turn. All I know is I don’t know how long I can stay with the pain I am in. So please if you have any advice, prayers of just give me a kick in the but. It would be apreciated.

Thanks for listening.

I have suffered from Chronic sinus disease for years. Turns out that I have celiac disease. After 3 surgeries, countless trips to the Doctor, allergist, and shots I've gotten the sinus problems under control with diet, exercise, and supplements. I really can't say what has helped the most...except finding an alternative medicine doctor. She's a research PHD and partner's with a Cardiologist. She diagnosed my Celiac and dairy issues. I'm also sensitive to Soy and eggs, but seem to tolerate them. She treated me for other things...including candida overgrowth using alternative supplements.

Mayo clinic in Jacksonville and two local ENT's couldn't diagnose the allergies to Gluten and dairy...so I have little faith in traditional medicine.

The bottom line is that my sinuses are much better....levels of inflammation are way down (I don't react to bug bites...or have sores in my mouth). I struggle with the diet...mentally...but am much happier and healthier.

My energy level is really the best since I was a kid... This week I burned about 10,000 calories, running, biking, golfing, and weight lifting.

My weight is down from 240 to 180....my friends tell me I'm "too skinny."

Gluten and dairy intolerance is a major source of chronic disease. For those of you who don't know this then it might be a game changer. It was for me.

it's been that kind of ..........YEAR

Every thing flaring up at once :0(

RLS keeping me up and making every raw throbbing nerve scream.

keeping all in my prayers; fizzledout

we all know that medicare does not pay well. But the coverage that congress, senators does pay well. I may have missed this how much is going to cost a person to get this type of coverage.Can I choose to get a policy like senators,congress.Eventhought I have medicare.
anytime the goverment has a plan john q public get shafted.
I'm willing to bet these people sitting on these panels
got good insurance. I like to see some average people on that panel.Maybe they could explain to the gov panel what insurance company do to keep from paying

mkittyp

mkittyp

I hope I am not ruffling feathers here because I don't know if I should leave this message here, or What makes me Mad... but we have the most to loose.

I have been reading about the new medical bill about to be voted on in congress, and when I read things about if after the age of 65, one is not a contributing member to society that our treatment will be limited. No hip replacements, surgery for cancer, but they will allow us to seek assisted suicide. Now I have lifed in pain most of my life, and I worked hard, like most of us. I will be 62 in a couple of months and I many not be able to do volunteer work anymore, but I do contribute... I help my grandchildren, I have taken in people at time when they had no place to go. Look at Grandma Moses she was almost in her 80's when she started painting, and I got my first poem published after I was fifty.

So all of those who are in chronic pain, or with a disabilitating diseasse, call your, writer speak out. Non of us are not indispensaple, we may be the ones who through our pain they can find a cure to Rhumetory Arthritus, Lupus, MS, Hopshkin, or other crippling diseases. "Let us go quietly into the night" Lets go kicking and screaming.

Sometimes being ill people think we are pushovers, but I am a very active and vocal voice in my own health care, and this is def. about my health..

Thanks for listening

Debbie

Most of the medical problems I have like RA, Fibromyalgia even the chronic celulitues will not cause death, however I also have COPD, my reward for never smoking a day in my life. And if you are all like me, you fight to keep from letting any illiness stop you. I fought for a long time until I gave in and got an electric wheelchair, and I will admit it made my life so much better. Now out of the blue after changing doctors (my dr. has a chronic illiness himself and may not make it)....I am told I need to be on oxygen 24/7, I just don't know how this can be, I was in the hospital last month for the celulitus and they thought heart problems, and I was told both were in great condition. Now I am not getting oxygen in my blood stream, what to do???? do I do as they say, or fight, maybe loosing one of the few dr. that will take medicare and medicade. HELP,,,, need your oppinions, you all know what I am going through.... HELP

Thanks all of you,
Debbie