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Where is the Alzheimer's Association? Read and find out on the Alzheimer's Reading Room.
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My young wife ( 57 ) orginally was diagnosed with Early Onset AD, changed 3 yrs ago to Frontal Temporal Dementia, Last week had a 4 1/2 hr bout in the middle of the night she is screming for me to help, but won't let me near her, even when I'm standing by her she is calling my name but thinks I'm the bad guy in here dreams.
This morning the same thing, started as a good morning, went to get her a cup of coffee, when I returned she didn't know me & is so angry that I'm going to hurt her but keeps screaming for me to come help. She knows my voice from the other room, but as soon as I enter the room she pulls back in fright or is ready to defend herself
Don't quite know why I'm babling on but feel so useless & confused & just wish I could help & protect her like I always have done. I'm lucky ( in a way ) I'm also a caregiver for my 84 yr old mom ( advance COPD & Heart issues ) but as I'm writing this Mom is able to talk to her & told her she chased away the bad guy. I can hear her still ranting about the bad man who was in her room, but at least she is a little calmer.
I'm sure many of you have or will deal with this issue, I'm all ears & could use advice, if not to make her better just how to cope, or what has been the deciding factor when they make the big decision.
Allen

After reading some of the posts in here I want to say that I feel for all of you. Many of you are talking about spouses having dementia, but my father has Alzheimer's and I'm having a hard time trying to manage telling my kids how to feel about it and how to act around him. I found something about Alzheimer's on a site.
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I showed that to my kids and it seemed to help a little bit. Maybe it can help some of you too.
I'm very sorry to hear about the heartache of going through this. My support goes out to all of you.

I would like to welcome all our new members. Often our members are busy taking care of loved ones with dementia to chat much but they have provided a lot of good
advice and ideas in the pages of this group.

Please share with us your stories, ask for help and help others. We are all in this strange world of dementia together.

Look forward to getting to know you.

Welcome EMM!

Please share your story with us.

I think if you go from page to page here there will be lots of information to help you. Please let us know if you have a topic you would like to see covered or an
experience that you have questions about or experience with that can help others dealing with this ever changing dementia.

My husband has dementia and requires more and more assistance. Luckily, I am a retired RN although I never had experience with dementia patiens. He is 82 and I am 78. I do have help 6-8 hourseek. My children do not live close but my son is a great help to me. It seems that I cry a lot. It is so sad to see what the disease is doing to him. I really do not have much time to spend on my computer, but I will try to answer anyone who writes.

Marge 8386

This just came out in the Alzheimer's Reading Room. Personally, I think it should be required reading for everyone, especially those in the medical field. It puts forth the "true" face of the Alzheimer's patient. The mass populace must change their perspective of persons who become afflicted by this debilitating disease. To reiterate what Angil Tarach, the writer of this article, is saying, people need to understand Alzheimer's (or any type of dementia). They must learn and understand that the AD victim is a person with a disease, not a person who is a disease. There is a huge difference here!

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Julie

I ran across this article and thought it might belong here, in case someone can help. view link
Thank you in advance.
Rose

I was looking on Caregiver's site and sadly saw that Albie passed away today. HippyGirl, please know you are in my thoughts and prayers. You were blessed to have had such a sweet husband, and he was blessed to have had such a loving and devoted wife.

May God bless you.

I just joined eons and love it! This group is of particular interest to me as my dear father-in-law has had Alzheimer's for three years now. He's 77 and my mother-in-law is 75. She has been the primary caregiver all this time. That is about to change as she is unable to handle it all by herself. He's not to the point (yet) where she needs to look at moving him, but getting some home assistance is a must at this point, so her health doesn't fail. Their three boys live 7-12 hours away. So with her OK we're meeting with a home care agency at their home for an initial evaluation to determine what services will help her at this time while he is still living at home. I don't have to tell any of you how difficult all this is. But our greatest concern is for their mother. I'm also going to talk with her about attending the local caregiver support group sponsored by the Alzheimer's Association. Thankfully, due to the business I've been in for years, I've been able to help a lot with this situation, knowing what type of service to reach for, making contact, questions to ask etc. Sadly, Alzheimer's cases are expected to nearly double every 20 years.
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