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Dementia in Real Time
Sometimes the ones suffering from dementia or Alzheimer's seem to be on the inside looking out. We try to ease their
confusion and bring the outside in.
AND when we need someone who understands, we come here. We help each other scream, cry, and sometimes just laugh till we can get back up and keep on keeping on.
God love us all, we have to laugh to keep from crying!
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High POint Low Point of your Day
Just wondering what is the high point and low point of your day dealing with dementia.
Let's Start with Friday!
Let's Start with Friday!
Pay less for medications??
Some of the dementia meds are soooo expensive...I found a website that is dedicated to finding you either less expensive meds or grants for medication...http://www.needymeds.org/ - It is called NeedMeds.org
Please use it or pass it on - it is important that people are able to get what they need.
Please use it or pass it on - it is important that people are able to get what they need.
Nursing Homes
For you members who have loved ones or friends in nursing homes who take maintenance medication, how are they billed for their copays or full pays of the drugs they are on.
My dad died in 1997 and I know how carefully we had to watch what the drug company billed us for medications ordered and sent directly to the nursing home.
Please let me know how this is handled now.
Thanks.
My dad died in 1997 and I know how carefully we had to watch what the drug company billed us for medications ordered and sent directly to the nursing home.
Please let me know how this is handled now.
Thanks.
A good nursing home story
If you want to read a feel good nursing home story, read this one by Laura Bramley. view link
What an excellent article. Laura summed it up with this: "I felt as if I was in someone's home, and I was tempted to flop down in a chair and put my feet up on the coffee table as if I was at my parent's house. I've never felt that way in a dementia care facility before."
Wouldn't it be great if we had Lakeview ranches all over the USA.
Thank you Laura, and thank you Judy Berry for giving your all.
Rose
What an excellent article. Laura summed it up with this: "I felt as if I was in someone's home, and I was tempted to flop down in a chair and put my feet up on the coffee table as if I was at my parent's house. I've never felt that way in a dementia care facility before."
Wouldn't it be great if we had Lakeview ranches all over the USA.
Thank you Laura, and thank you Judy Berry for giving your all.
Rose
Aricept
I need some input.
My soon to be 87 year old mother has been on Aricept for several years. During the past few months both her mental and physical health have been deteriorating. She has many of aricepts side effects (headache, diahrehha, nausea). She is losing her memory of the past few years and cannot remember what she had for dinner an hour before. The owner of her group home consulted with the group home doctor and it has been suggested that she should be taken off aricept since it is losing it's effectiveness. This drug costs $200.00 each month. Does anyone have any experience --positive or negative as to what happens once a person is taken off aricept? Please let me know. Thanks!
My soon to be 87 year old mother has been on Aricept for several years. During the past few months both her mental and physical health have been deteriorating. She has many of aricepts side effects (headache, diahrehha, nausea). She is losing her memory of the past few years and cannot remember what she had for dinner an hour before. The owner of her group home consulted with the group home doctor and it has been suggested that she should be taken off aricept since it is losing it's effectiveness. This drug costs $200.00 each month. Does anyone have any experience --positive or negative as to what happens once a person is taken off aricept? Please let me know. Thanks!
What a difference a day makes!
For the past month, there has been little communication from Ma Katie. She couldn't even wheel her wheelchair and she had been quite active in going from hall to hall and checking in other's rooms, often uninvited <:
Today, she came out of her stupor and was back to roaming the halls.
She still did not know us and rolled out while we sat in her room, on to more important matters (: But at least she was alive in her eyes.
We know not what tomorrow will bring but for today, it was good.
Today, she came out of her stupor and was back to roaming the halls.
She still did not know us and rolled out while we sat in her room, on to more important matters (: But at least she was alive in her eyes.
We know not what tomorrow will bring but for today, it was good.
The Alzheimer's Association
Where is the Alzheimer's Association? Read and find out on the Alzheimer's Reading Room.
view link
view link
Confusion
My young wife ( 57 ) orginally was diagnosed with Early Onset AD, changed 3 yrs ago to Frontal Temporal Dementia, Last week had a 4 1/2 hr bout in the middle of the night she is screming for me to help, but won't let me near her, even when I'm standing by her she is calling my name but thinks I'm the bad guy in here dreams.
This morning the same thing, started as a good morning, went to get her a cup of coffee, when I returned she didn't know me & is so angry that I'm going to hurt her but keeps screaming for me to come help. She knows my voice from the other room, but as soon as I enter the room she pulls back in fright or is ready to defend herself
Don't quite know why I'm babling on but feel so useless & confused & just wish I could help & protect her like I always have done. I'm lucky ( in a way ) I'm also a caregiver for my 84 yr old mom ( advance COPD & Heart issues ) but as I'm writing this Mom is able to talk to her & told her she chased away the bad guy. I can hear her still ranting about the bad man who was in her room, but at least she is a little calmer.
I'm sure many of you have or will deal with this issue, I'm all ears & could use advice, if not to make her better just how to cope, or what has been the deciding factor when they make the big decision.
Allen
This morning the same thing, started as a good morning, went to get her a cup of coffee, when I returned she didn't know me & is so angry that I'm going to hurt her but keeps screaming for me to come help. She knows my voice from the other room, but as soon as I enter the room she pulls back in fright or is ready to defend herself
Don't quite know why I'm babling on but feel so useless & confused & just wish I could help & protect her like I always have done. I'm lucky ( in a way ) I'm also a caregiver for my 84 yr old mom ( advance COPD & Heart issues ) but as I'm writing this Mom is able to talk to her & told her she chased away the bad guy. I can hear her still ranting about the bad man who was in her room, but at least she is a little calmer.
I'm sure many of you have or will deal with this issue, I'm all ears & could use advice, if not to make her better just how to cope, or what has been the deciding factor when they make the big decision.
Allen
Dad Has Alzheimer's
After reading some of the posts in here I want to say that I feel for all of you. Many of you are talking about spouses having dementia, but my father has Alzheimer's and I'm having a hard time trying to manage telling my kids how to feel about it and how to act around him. I found something about Alzheimer's on a site.
view link
I showed that to my kids and it seemed to help a little bit. Maybe it can help some of you too.
I'm very sorry to hear about the heartache of going through this. My support goes out to all of you.
view link
I showed that to my kids and it seemed to help a little bit. Maybe it can help some of you too.
I'm very sorry to hear about the heartache of going through this. My support goes out to all of you.
