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Dementia in Real Time
Sometimes the ones suffering from dementia or Alzheimer's seem to be on the inside looking out. We try to ease their
confusion and bring the outside in.
AND when we need someone who understands, we come here. We help each other scream, cry, and sometimes just laugh till we can get back up and keep on keeping on.
God love us all, we have to laugh to keep from crying!
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High POint Low Point of your Day
Just wondering what is the high point and low point of your day dealing with dementia.
Let's Start with Friday!
Let's Start with Friday!
What a difference a day makes!
For the past month, there has been little communication from Ma Katie. She couldn't even wheel her wheelchair and she had been quite active in going from hall to hall and checking in other's rooms, often uninvited <:
Today, she came out of her stupor and was back to roaming the halls.
She still did not know us and rolled out while we sat in her room, on to more important matters (: But at least she was alive in her eyes.
We know not what tomorrow will bring but for today, it was good.
Today, she came out of her stupor and was back to roaming the halls.
She still did not know us and rolled out while we sat in her room, on to more important matters (: But at least she was alive in her eyes.
We know not what tomorrow will bring but for today, it was good.
The Alzheimer's Association
Where is the Alzheimer's Association? Read and find out on the Alzheimer's Reading Room.
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Confusion
My young wife ( 57 ) orginally was diagnosed with Early Onset AD, changed 3 yrs ago to Frontal Temporal Dementia, Last week had a 4 1/2 hr bout in the middle of the night she is screming for me to help, but won't let me near her, even when I'm standing by her she is calling my name but thinks I'm the bad guy in here dreams.
This morning the same thing, started as a good morning, went to get her a cup of coffee, when I returned she didn't know me & is so angry that I'm going to hurt her but keeps screaming for me to come help. She knows my voice from the other room, but as soon as I enter the room she pulls back in fright or is ready to defend herself
Don't quite know why I'm babling on but feel so useless & confused & just wish I could help & protect her like I always have done. I'm lucky ( in a way ) I'm also a caregiver for my 84 yr old mom ( advance COPD & Heart issues ) but as I'm writing this Mom is able to talk to her & told her she chased away the bad guy. I can hear her still ranting about the bad man who was in her room, but at least she is a little calmer.
I'm sure many of you have or will deal with this issue, I'm all ears & could use advice, if not to make her better just how to cope, or what has been the deciding factor when they make the big decision.
Allen
This morning the same thing, started as a good morning, went to get her a cup of coffee, when I returned she didn't know me & is so angry that I'm going to hurt her but keeps screaming for me to come help. She knows my voice from the other room, but as soon as I enter the room she pulls back in fright or is ready to defend herself
Don't quite know why I'm babling on but feel so useless & confused & just wish I could help & protect her like I always have done. I'm lucky ( in a way ) I'm also a caregiver for my 84 yr old mom ( advance COPD & Heart issues ) but as I'm writing this Mom is able to talk to her & told her she chased away the bad guy. I can hear her still ranting about the bad man who was in her room, but at least she is a little calmer.
I'm sure many of you have or will deal with this issue, I'm all ears & could use advice, if not to make her better just how to cope, or what has been the deciding factor when they make the big decision.
Allen
Dad Has Alzheimer's
After reading some of the posts in here I want to say that I feel for all of you. Many of you are talking about spouses having dementia, but my father has Alzheimer's and I'm having a hard time trying to manage telling my kids how to feel about it and how to act around him. I found something about Alzheimer's on a site.
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I showed that to my kids and it seemed to help a little bit. Maybe it can help some of you too.
I'm very sorry to hear about the heartache of going through this. My support goes out to all of you.
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I showed that to my kids and it seemed to help a little bit. Maybe it can help some of you too.
I'm very sorry to hear about the heartache of going through this. My support goes out to all of you.
Welcome all our new members
I would like to welcome all our new members. Often our members are busy taking care of loved ones with dementia to chat much but they have provided a lot of good
advice and ideas in the pages of this group.
Please share with us your stories, ask for help and help others. We are all in this strange world of dementia together.
Look forward to getting to know you.
advice and ideas in the pages of this group.
Please share with us your stories, ask for help and help others. We are all in this strange world of dementia together.
Look forward to getting to know you.
Welcome Emm
Welcome EMM!
Please share your story with us.
I think if you go from page to page here there will be lots of information to help you. Please let us know if you have a topic you would like to see covered or an
experience that you have questions about or experience with that can help others dealing with this ever changing dementia.
Please share your story with us.
I think if you go from page to page here there will be lots of information to help you. Please let us know if you have a topic you would like to see covered or an
experience that you have questions about or experience with that can help others dealing with this ever changing dementia.
My husband has dementia
My husband has dementia and requires more and more assistance. Luckily, I am a retired RN although I never had experience with dementia patiens. He is 82 and I am 78. I do have help 6-8 hourseek. My children do not live close but my son is a great help to me. It seems that I cry a lot. It is so sad to see what the disease is doing to him. I really do not have much time to spend on my computer, but I will try to answer anyone who writes.
Marge 8386
Marge 8386
Required Reading: "Take 2"
This just came out in the Alzheimer's Reading Room. Personally, I think it should be required reading for everyone, especially those in the medical field. It puts forth the "true" face of the Alzheimer's patient. The mass populace must change their perspective of persons who become afflicted by this debilitating disease. To reiterate what Angil Tarach, the writer of this article, is saying, people need to understand Alzheimer's (or any type of dementia). They must learn and understand that the AD victim is a person with a disease, not a person who is a disease. There is a huge difference here!
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Julie
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Julie
