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Hello to everyone
I wanted to say hello to everyone- I realize it has been ages since I checked in but I just dont get online much anymore, and Eons has not made it any easier for me lol.
The people in this group especially are always in my thoughts and prayers- so just because I am not here doesnt mean I forgot you! I never will ...
I am doing quite well at the moment- working part time as a medical claims specialist again- my own hours too and it supplements that disability income a bit :-)
Last ct scan shows the BAC lung ca is stable- so the Tarceva is still working :-) I take long walks several times a week :-) And my hair is growing back super curly-roflmao.
Happy Birthday to Mike (tomorrow :-)
Best to everyone!
Peace, hugs, health, hope
Cath
The people in this group especially are always in my thoughts and prayers- so just because I am not here doesnt mean I forgot you! I never will ...
I am doing quite well at the moment- working part time as a medical claims specialist again- my own hours too and it supplements that disability income a bit :-)
Last ct scan shows the BAC lung ca is stable- so the Tarceva is still working :-) I take long walks several times a week :-) And my hair is growing back super curly-roflmao.
Happy Birthday to Mike (tomorrow :-)
Best to everyone!
Peace, hugs, health, hope
Cath
Hi Everyone
Hi Everyone,
I am so sorry I haven't been on in long while- sometimes the time just gets aways from me and sometimes depression creeps up without me fully realizing it even though I am doing ok. I feel like I left you hanging and that was never my intention- I do think about all of you everyday and try to keep positive energy and thoughts going for your continued success stories, and courage and hope for when times are not so good.
I see my friend Ron here as a new member- welcome! This is a terrific group of people :-) And they put up with me too lol. Ron- today I not only made the coffee, but I remembered to drink it too :-)
My ct scan a month ago showed no progression for my lung cancer- yippee! I love stable! The Tarceva is still working. But I received a letter from my oncologist that he was leaving. This is the third time now that I will have to break in a new oncologist, but it happens, right?
Mike, I think you are doing a great job here- not many would continue to fight the good fight for us after what you have been through, but I surely respect you for that :-)
Peace & hugs
Cath
I am so sorry I haven't been on in long while- sometimes the time just gets aways from me and sometimes depression creeps up without me fully realizing it even though I am doing ok. I feel like I left you hanging and that was never my intention- I do think about all of you everyday and try to keep positive energy and thoughts going for your continued success stories, and courage and hope for when times are not so good.
I see my friend Ron here as a new member- welcome! This is a terrific group of people :-) And they put up with me too lol. Ron- today I not only made the coffee, but I remembered to drink it too :-)
My ct scan a month ago showed no progression for my lung cancer- yippee! I love stable! The Tarceva is still working. But I received a letter from my oncologist that he was leaving. This is the third time now that I will have to break in a new oncologist, but it happens, right?
Mike, I think you are doing a great job here- not many would continue to fight the good fight for us after what you have been through, but I surely respect you for that :-)
Peace & hugs
Cath
Living With Cancer
FYI- the Living With Cancer Group has been without a manager and I pm'd Beth (communitygal) about it today to see what's up. I also suggested that maybe she might want to refer people here if they are a cancer patient, caretaker or survivor, but then I realized I forgot to ask- I cannot remember much activity in the group lately but I hate to leave anyone out in the cold if they need help or want to talk.
I just wanted to give you a heads up that this group link is now posted in the Living With Cancer group as a caring group to look at.
Peace
Cath
(You can shoot me later!)
I just wanted to give you a heads up that this group link is now posted in the Living With Cancer group as a caring group to look at.
Peace
Cath
(You can shoot me later!)
Happy St Patrick's Day!
Happy St Patrick's Day to all my friends here!
'Sláinte chuig na fir, agus go mairfidh na mná go deo.'
Health to the men, and may the women live forever!
Peace, Cath
'Sláinte chuig na fir, agus go mairfidh na mná go deo.'
Health to the men, and may the women live forever!
Peace, Cath
Coffee
In followup to my other post- this might give you a chuckle. I know it is not much, but sometimes the little things make me sit down and just laugh at myself.
Got up at 7, took Tarceva.
Went back to sleep.
Got up at 9, made coffee.
Went online.
An hour later remembered the coffee.
Went to get some.
Forgot to turn on coffeemaker.
Turned it on.
Did a couple of chores.
Went back online.
Forgot the coffee.
Coffeemaker auto shut off after 2 hours.
Remembered the coffee.
It is now ice cold.
Making more coffee.
I just cannot think straight without my coffee.
Peace,
Cath
Got up at 7, took Tarceva.
Went back to sleep.
Got up at 9, made coffee.
Went online.
An hour later remembered the coffee.
Went to get some.
Forgot to turn on coffeemaker.
Turned it on.
Did a couple of chores.
Went back online.
Forgot the coffee.
Coffeemaker auto shut off after 2 hours.
Remembered the coffee.
It is now ice cold.
Making more coffee.
I just cannot think straight without my coffee.
Peace,
Cath
Unexpected things
Unexpected things
Peaceofmyheart recently sent me a gift of ballet slippers to signify me putting on my dancing shoes after a recent good oncology followup (cancer stable, no progression). Well Peace, it had unexpected results....
Instead of dancing, I finally got out my paintbrushes again and did 2 paintings in 2 days. Your gift reminded me of the paintings I used to do and so I started with a ballerina, followed by a painting of the Holland Harbor Light in Michigan. Both will be donated to the Jason Plite Memorial Fund to be auctioned off for a fundraiser to set up a scholarship fund in his memory. Jason was a young paramedical paratrooper killed in Afghanistan, and one of my fellow artists had done his portrait for the Faces of the Fallen Tribute. He arranged to have more artists contribute works, including me, but I couldnt seem to get my act together.
Peace, your simple act of kindness got me out of myself, and I did it! I got past feeling sorry for myself, feeling depressed and alone, tired of feeling sick, and I just did it... And it felt wonderful. And it reminded me that it feels a whole lot better to be giving- even when there isnt much left to give- even when we are at our lowest. The words we use to support each other here in our pain and grief, and along with good news sometimes go far beyond what we ever imagined.
Thanks Peaceofmyheart for being there when I didnt even know I needed you :-) If you want to see the paintings I did, just click on my profile photos- they are the last two I uploaded :-)
Hugs
Cath
(I am still trying to fix my laptop so it runs better at home- I have been able to read the messages posts, it just takes forever to respond- but I have everyone in my prayers and wishing you all good things all the time- I ache for how hard it is for some of you right now and pray somehow you will find the strength to cope )
Peaceofmyheart recently sent me a gift of ballet slippers to signify me putting on my dancing shoes after a recent good oncology followup (cancer stable, no progression). Well Peace, it had unexpected results....
Instead of dancing, I finally got out my paintbrushes again and did 2 paintings in 2 days. Your gift reminded me of the paintings I used to do and so I started with a ballerina, followed by a painting of the Holland Harbor Light in Michigan. Both will be donated to the Jason Plite Memorial Fund to be auctioned off for a fundraiser to set up a scholarship fund in his memory. Jason was a young paramedical paratrooper killed in Afghanistan, and one of my fellow artists had done his portrait for the Faces of the Fallen Tribute. He arranged to have more artists contribute works, including me, but I couldnt seem to get my act together.
Peace, your simple act of kindness got me out of myself, and I did it! I got past feeling sorry for myself, feeling depressed and alone, tired of feeling sick, and I just did it... And it felt wonderful. And it reminded me that it feels a whole lot better to be giving- even when there isnt much left to give- even when we are at our lowest. The words we use to support each other here in our pain and grief, and along with good news sometimes go far beyond what we ever imagined.
Thanks Peaceofmyheart for being there when I didnt even know I needed you :-) If you want to see the paintings I did, just click on my profile photos- they are the last two I uploaded :-)
Hugs
Cath
(I am still trying to fix my laptop so it runs better at home- I have been able to read the messages posts, it just takes forever to respond- but I have everyone in my prayers and wishing you all good things all the time- I ache for how hard it is for some of you right now and pray somehow you will find the strength to cope )
Ct scan & onco f/o today
still stable! Yay- the lung cancer is still there, but not progressing at this time so I will stay on the Tarceva and see them in 3 months :-)
Just wanted to share some good news ...
Peace, hugs, hope
Cath
Just wanted to share some good news ...
Peace, hugs, hope
Cath
Waves...
To everyone with recent trouble- I just want to say hang in there- we are here so you can vent, listen to you rant and let it out or whatever it takes to keep you afloat. We are here to say you are NOT alone.
It sometimes feels like, there you were, minding your business, walking along the beach and out of nowhere a HUGE wave knocks you over- you are caught in the roiling water, tumbling around, sputtering, trying to regain your footing, trying to breathe, and another one knocks into you...
Eventually the water recedes, you are still on the beach, a bit battered, but you stand up and see others rushing over to help ....
Those awful moments of being totally out of control are horrible... but then you get it back together again somehow and there are hugs and soothing words- maybe they cannot fix things, but they can offer comfort in your grief.
No one can go through what you are living or have already gone through, but by god, we can empathize and shout encouragement and remember that we have been through similar experiences.
I haven't been able to stay online long enough to respond much lately(dialup problems, not health), but I have been able to read your messages and want you to know that you are all in my thoughts, prayers, and whatever positive energy I can send your way I do...
Peace, much love, hugs, healing strength
Cath
It sometimes feels like, there you were, minding your business, walking along the beach and out of nowhere a HUGE wave knocks you over- you are caught in the roiling water, tumbling around, sputtering, trying to regain your footing, trying to breathe, and another one knocks into you...
Eventually the water recedes, you are still on the beach, a bit battered, but you stand up and see others rushing over to help ....
Those awful moments of being totally out of control are horrible... but then you get it back together again somehow and there are hugs and soothing words- maybe they cannot fix things, but they can offer comfort in your grief.
No one can go through what you are living or have already gone through, but by god, we can empathize and shout encouragement and remember that we have been through similar experiences.
I haven't been able to stay online long enough to respond much lately(dialup problems, not health), but I have been able to read your messages and want you to know that you are all in my thoughts, prayers, and whatever positive energy I can send your way I do...
Peace, much love, hugs, healing strength
Cath
welcome new members!
I just wanted to say hi and welcome to the group - it is a mixed bag - happy to meet you, sad you have to be here- but there are some very warm caring and loving people here :-)
I was so inspired looking at your profile mnteddy- wow - what a beautiful thing you have done - and I sincerely hope your wife is doing ok at the moment. I also have lung cancer and assume you probably have some great links on line to lung cancer groups, but if you need any, then please let me know. The very best one, besides my list -serv BAC-lung cancer group, is a site run by a wonderful oncologist, Dr Benjamin (Jack) West to help patients sort good from bad info - it is ONCTALK, and I have it as a widget on my google home page. The link is www.onctalk.com There is also a lungalliance group that has member blogs and postings - we are finding much more information today than we used to.
To the jersey girl- I moved here from a year ago- and while I really miss central jersey, living in central virginia is really great too ... I wanted to welcome you also for whatever your needs are, as patient or caregiver, and to tell you that you will find some good support here.
Peace, health, hope
Cath
I was so inspired looking at your profile mnteddy- wow - what a beautiful thing you have done - and I sincerely hope your wife is doing ok at the moment. I also have lung cancer and assume you probably have some great links on line to lung cancer groups, but if you need any, then please let me know. The very best one, besides my list -serv BAC-lung cancer group, is a site run by a wonderful oncologist, Dr Benjamin (Jack) West to help patients sort good from bad info - it is ONCTALK, and I have it as a widget on my google home page. The link is www.onctalk.com There is also a lungalliance group that has member blogs and postings - we are finding much more information today than we used to.
To the jersey girl- I moved here from a year ago- and while I really miss central jersey, living in central virginia is really great too ... I wanted to welcome you also for whatever your needs are, as patient or caregiver, and to tell you that you will find some good support here.
Peace, health, hope
Cath
good ct scan today :-)
Just wanted to share- good ct scan today- there is no new cancer and what I have is stable!!!! Yippee!!!
Dx- BAC Lung Cancer, Stage IV, non mucinous, multifocal, bilateral. Post thoracotomy March 2007, LLL resection, LUL wedge sections. Started Tarceva June 1, 2007- and it is working! There had been some progression after the surgery before the Tarceva, but it is stable for the last 6 months now with the drug. Makes the side effects from the chemo seem worth it all - roflmao- almost bald, blotchy dry skin, diarrhea, but my energy is coming back and the rest I can deal with :-)
I hope EVERYONE has a MERRY and HOPEFUL and HEALTHY Holiday - there are more well wishes for us out there than we realize :-)
Peace, hugs
Cath
Dx- BAC Lung Cancer, Stage IV, non mucinous, multifocal, bilateral. Post thoracotomy March 2007, LLL resection, LUL wedge sections. Started Tarceva June 1, 2007- and it is working! There had been some progression after the surgery before the Tarceva, but it is stable for the last 6 months now with the drug. Makes the side effects from the chemo seem worth it all - roflmao- almost bald, blotchy dry skin, diarrhea, but my energy is coming back and the rest I can deal with :-)
I hope EVERYONE has a MERRY and HOPEFUL and HEALTHY Holiday - there are more well wishes for us out there than we realize :-)
Peace, hugs
Cath
