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73 submitted so far! I need 200!
Hello, all! Our research team the Center for Assistive Technology and Environmental Access (CATEA) at Georgia Tech in collaboration with Fordham University is interested in learning how adults with disabilities adapt to the workplace environment. Click the link below if you would like to fill out the survey.
view link
Contact me with any questions!
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Contact me with any questions!
Help us learn about disabilities and work!
Dear members of Ability,
We are contacting you because our research team the Center for Assistive Technology and Environmental Access (CATEA) at Georgia Tech in collaboration with Fordham University is trying to learn more about how adults with disabilities adapt to the workplace environment. Our goal is to find out about difficulties experienced in the workplace by adults with disabilities and accommodations that individuals use to cope with these difficulties. To accomplish our goal, we need volunteers to fill out a survey asking questions related to your workplace (whether you work from home or in an office), difficulties experienced at work because of a disability, and your overall well-being.
If you choose to participate in the study, you will be asked to fill out an electronic survey. Please note that your identity will be kept completely confidential. The information you provide will be important in helping us learn about the strategies people with disabilities use to accomplish work tasks.
Please click the following link to begin filling out the survey:
view link
Please contact Michelle Paggi at mpaggi@fordham.edu if you have any questions.
We greatly appreciate your time.
Sincerely,
Michelle Paggi
We are contacting you because our research team the Center for Assistive Technology and Environmental Access (CATEA) at Georgia Tech in collaboration with Fordham University is trying to learn more about how adults with disabilities adapt to the workplace environment. Our goal is to find out about difficulties experienced in the workplace by adults with disabilities and accommodations that individuals use to cope with these difficulties. To accomplish our goal, we need volunteers to fill out a survey asking questions related to your workplace (whether you work from home or in an office), difficulties experienced at work because of a disability, and your overall well-being.
If you choose to participate in the study, you will be asked to fill out an electronic survey. Please note that your identity will be kept completely confidential. The information you provide will be important in helping us learn about the strategies people with disabilities use to accomplish work tasks.
Please click the following link to begin filling out the survey:
view link
Please contact Michelle Paggi at mpaggi@fordham.edu if you have any questions.
We greatly appreciate your time.
Sincerely,
Michelle Paggi
accessibility of Eons games
I'm new to Eons and to this group. I'm enjoying sampling groups, blogs, etc. I'm blind and use a screen reader and all is well except No Games are screen reader friendly. Such games do exist and I'd like to make the Eons team aware, but couldn't find how to contact them in the help section. Any ideas?
Hey, there!
Yes, I'm new to the group, finally responding to an invitation. My major disability is mental illness (bipolar depression) although I also have serious arthritis in my knees, sleep apnea, and a seizure disorder. Oh, yes, and celiac sprue, which limits what I can eat rather severely. Any one thing would be enough, but the combination is discouraging.
Karen
Karen
posted
by karenvan2
Hi-dee-ho good neighbors!
Mollie53 here! I'm newly disabled (well, my hubby would say there has ALWAYS been something wrong with me!) and I have been looking for other newly disabled folks (or maybe NOT so newly disabled) to care and share with.
I guess my story starts WAY back in the summer of '78. I lifted a box that was WAY too heavy for me and, you guessed it, *wrench* went my back. Since then I have had recurring back problems. Well, on August 29, 2006 I had stomach flu. Well, I THOUGHT it was stomach flu. Not so. Three days later they were admitting me to the hospital with a fever of 104 degrees, and the surgeon said he couldn't tell from the CT scans just what was going on in there because it was so messed up! Yikes! As it happens, my appendix had perforated, making for a slow leak into my body cavity. After a 6 hour long surgery, my heart gave out, and wouldn't keep my blood pressure up. Then I had respiratory failure too! (Gee, aren't I just a bundle of joy!) The infection was so massive, I ended up with peritonitis and sepsis. Three days later, as I awoke from my come, I found myself hooked up to a respirator! Imagine that!
They had me drugged up out of my mind on morphine, and I lapsed in and out of consciousness for several days after that. After a total of 2 weeks in the hospital, they sent me home.
From there, my whole body went south (no, please don't start singing "oh, I wish I was in the land o' cotton!).
Six months later I went back to the hospital for more CT scans, this time of my lumbar spine and neck. Turns out I've got lumbar spinal stenosis, cervical stenosis, arthritis in my spine, right shoulder, right hip, and hands, along with some of the other "fun" things that go along with aging, like hbp, diabetes, etc.
I filed for disability benefits (of course, you guessed it, almost a year later, and I'm STILL waiting for my turn for a hearing, having been denied TWICE), and am now on Medicaid (many thanks to God!). I've got killer migraines daily from the cervical stenosis, although my doctor suspects I may have something wrong with my brain (oh, joy!) which may be causing the migraines. Of course, my husband has always maintained that "the child just ain't right in the head", but then, who am I to say he's wrong! :-))
Being new to Medicaid, they have inundated me with one program after another which will benefit me. When asked what ELSE they could do to lend me assistance, I asked them if they had a support group for the "newly disabled". You guessed it...of course not! I was on my own to see what I could find. So, all y'all are my first stop.
My back prohibits me from being on the computer for not much longer than about 15 minutes. After that, I get a case of the screamin' mimi's and gotta get back to living my life in my recliner. Well, more later! Gotta run (figuratively speaking, that is).
Mollie53 (well, I'll soon be 55)
I guess my story starts WAY back in the summer of '78. I lifted a box that was WAY too heavy for me and, you guessed it, *wrench* went my back. Since then I have had recurring back problems. Well, on August 29, 2006 I had stomach flu. Well, I THOUGHT it was stomach flu. Not so. Three days later they were admitting me to the hospital with a fever of 104 degrees, and the surgeon said he couldn't tell from the CT scans just what was going on in there because it was so messed up! Yikes! As it happens, my appendix had perforated, making for a slow leak into my body cavity. After a 6 hour long surgery, my heart gave out, and wouldn't keep my blood pressure up. Then I had respiratory failure too! (Gee, aren't I just a bundle of joy!) The infection was so massive, I ended up with peritonitis and sepsis. Three days later, as I awoke from my come, I found myself hooked up to a respirator! Imagine that!
They had me drugged up out of my mind on morphine, and I lapsed in and out of consciousness for several days after that. After a total of 2 weeks in the hospital, they sent me home.
From there, my whole body went south (no, please don't start singing "oh, I wish I was in the land o' cotton!).
Six months later I went back to the hospital for more CT scans, this time of my lumbar spine and neck. Turns out I've got lumbar spinal stenosis, cervical stenosis, arthritis in my spine, right shoulder, right hip, and hands, along with some of the other "fun" things that go along with aging, like hbp, diabetes, etc.
I filed for disability benefits (of course, you guessed it, almost a year later, and I'm STILL waiting for my turn for a hearing, having been denied TWICE), and am now on Medicaid (many thanks to God!). I've got killer migraines daily from the cervical stenosis, although my doctor suspects I may have something wrong with my brain (oh, joy!) which may be causing the migraines. Of course, my husband has always maintained that "the child just ain't right in the head", but then, who am I to say he's wrong! :-))
Being new to Medicaid, they have inundated me with one program after another which will benefit me. When asked what ELSE they could do to lend me assistance, I asked them if they had a support group for the "newly disabled". You guessed it...of course not! I was on my own to see what I could find. So, all y'all are my first stop.
My back prohibits me from being on the computer for not much longer than about 15 minutes. After that, I get a case of the screamin' mimi's and gotta get back to living my life in my recliner. Well, more later! Gotta run (figuratively speaking, that is).
Mollie53 (well, I'll soon be 55)
a long absence
Hiho quietstorm here,
I haven't been on Eons for about 8 months. In those eight months I've moved twice, been in the hospital for a short stint. It seems that my life is claming down so I would like to get out & ride a bike. With my disability (c/p) i have no balance so i need to find a 3 wheel recumbent bkie, hopefully i can find a nice used one. I hope to see you out there.
I haven't been on Eons for about 8 months. In those eight months I've moved twice, been in the hospital for a short stint. It seems that my life is claming down so I would like to get out & ride a bike. With my disability (c/p) i have no balance so i need to find a 3 wheel recumbent bkie, hopefully i can find a nice used one. I hope to see you out there.
new grouper!
I'm new to this group. and thought i can take in any and everyones info on Autism. My son on monday was tested for autism and it can back possitive and then i went to another place on wednesday and there he again came back possitive! Hes so young that i know we will get a great outcome out of it. My son is 20 month old. i always thought he was just spoiled.and did his own thing when he wanted to.. He started to very weird things that made me bring him to the doctors. i have a daughter that is 5 so i know when something looked weird to me. This is alot to take in and just like to hear from others how they did it! -Dayna
New Fibromyalgia Group
Hi all,
If anyone knows of or suffers from Fibromyalgia...we are recruiting members. I have started a new Eon's Group... Fibromyalgia Support Connection and wanted to share the information with you all in case you'd be interested or knew someone who would be.
Fibromyalgia:(FM) is a chronic pain illness characterized by widespread musculoskeletal aches, pain and stiffness, soft tissue tenderness, general fatigue, and sleep disturbances. The most common sites of pain include the neck, back, shoulders, pelvic girdle, and hands, but any body part can be affected. Fibromyalgia patients experience a range of symptoms of varying intensities that wax and wane over time.
It is estimated that approximately 3-6% of the U.S. population has FM. Although a higher percentage of women of all ages and races are affected, it does strike men and children. Because of its debilitating nature, fibromyalgia has a serious impact on patients' families, friends, and employers, as well as society at large.
The symptoms are: Pain,Fatigue, Sleep problems, IBS, Migraines, Restless Leg Syndrome, Impaired Memory/Concentration, Skin Rashes, Anxiety, Ringing in the ears, dry mouth & eyes, depression, Raynaud's Syndrome, Neuroligical symptoms, Impaired coordination...to name a few.
The efforts of our support group, are to help improve the quality of life for people with FM. Also, to help find better ways to diagnose and treat FM. All through networking and sharing.
The symptoms of FM can vary in severity and often wax and wane, but most patients can improve their lives over time or at least "manage" their quality of life they have. With FM...most sufferes feel they have lost control of their life and health. I feel that by actively seeking new information, talking to others who have FM, re-evaluating daily priorities, making lifestyle changes, and working hard to keep a hopeful attitude, the FM sufferer can take charge of their life and become the FM survivor! Join our group...if you can help, can relate or can sympathize!
If anyone knows of or suffers from Fibromyalgia...we are recruiting members. I have started a new Eon's Group... Fibromyalgia Support Connection and wanted to share the information with you all in case you'd be interested or knew someone who would be.
Fibromyalgia:(FM) is a chronic pain illness characterized by widespread musculoskeletal aches, pain and stiffness, soft tissue tenderness, general fatigue, and sleep disturbances. The most common sites of pain include the neck, back, shoulders, pelvic girdle, and hands, but any body part can be affected. Fibromyalgia patients experience a range of symptoms of varying intensities that wax and wane over time.
It is estimated that approximately 3-6% of the U.S. population has FM. Although a higher percentage of women of all ages and races are affected, it does strike men and children. Because of its debilitating nature, fibromyalgia has a serious impact on patients' families, friends, and employers, as well as society at large.
The symptoms are: Pain,Fatigue, Sleep problems, IBS, Migraines, Restless Leg Syndrome, Impaired Memory/Concentration, Skin Rashes, Anxiety, Ringing in the ears, dry mouth & eyes, depression, Raynaud's Syndrome, Neuroligical symptoms, Impaired coordination...to name a few.
The efforts of our support group, are to help improve the quality of life for people with FM. Also, to help find better ways to diagnose and treat FM. All through networking and sharing.
The symptoms of FM can vary in severity and often wax and wane, but most patients can improve their lives over time or at least "manage" their quality of life they have. With FM...most sufferes feel they have lost control of their life and health. I feel that by actively seeking new information, talking to others who have FM, re-evaluating daily priorities, making lifestyle changes, and working hard to keep a hopeful attitude, the FM sufferer can take charge of their life and become the FM survivor! Join our group...if you can help, can relate or can sympathize!
New Group: "COPD, live with it"
I am starting a new group. I was very surprised there isn't a support group for one of the most deadly diseases which kills millions of people every year: COPD. Modern technology and "know how" might offer relief and make life very bearable to people suffering from EMPHYSEMA and/or CHRONIC BRONCHITIS which are COPD components. COPD means CHronic Obstructive Pulmonary Disease. I would like to start an exchange of ideas, information or just plain story-telling among people who like to tell about their illness, what are they doing about it, exchange information and mostly UPDATE patients and Health specialists so they can keep up with modern technology and progress as relates to the disease. Name of new group: COPD, live with it Maryuri
Checking in
Hi all,I'm jancam1. I have'nt posted in quite awhile.Was hospitalized for a few days. Back to feeling good now and glad to be back online. Hope you all are well. Jan







