Message 723 of 3027

FMS Awareness Day

Bright blessings to all my fibro friends.
It is hard going through life having to pay dearly for everything we do. Our bodies and sometimes our brains let us down, but life is a journey, and this is just a part of it, not who we are.
I try to comport myself with dignity and good humor, but there are times when I end up sitting on my dignity because I've landed flat on my bum. That's where the humor comes in, and when we need it the most. One has limitations that demand to be acknowledged and coped with, and sometimes one just has to withdraw from the fray and take a down day. Don't pity us, we need your understanding and support, not your contempt and disbelief. When we cancel an outing or an occassion with friends or family, it's not because we don't want to spend time with you, it's that we have hit a wall and have gotten overwhelmed with pain, depression, extreme fatigue, or all of the above. We just need to regroup, so that maybe the next day we will function better, and not crash.
We're here to tell the world we're not victims, we're survivors, and do our best to maintain a worthy life. It is devastating to have people mistake our condition for fakery, or to be considered a malingerer because most of us look perfectly healthy for the most part. Our pain and aches and weaknesses are hidden, but they are real. They cover our psyche and our bodies like invisible bruises. We strive and struggle to do our best, we just have to do it a little at a time.
photo of oceanpagan
Replies 1 - 10 of 13
Very good Joanna you said it so well for all of us...
and try we do and continue we will...your a brave soul..

photo of caliebug

3 months ago
ocean, I was going to post something like this but I see that you have said it much better than I ever could have. Thanks.
photo of auntbee51

3 months ago
You have summed up our situation perfectly. Lets' see if we can BOOM this to the front page today!!
photo of nanaflower

3 months ago
This is where I finally admit I can't boom! When I click on the word boom it always tells me that I am the first one to boom an item--when i am not. Then asks all kinds of silly questions. Help?
photo of kathyw

3 months ago
truer words have never been spoken.

i was so reminded of that this mothers day, everyone wanted to do something with me, and i just couldnt.
photo of hippiemama

3 months ago
BOOMS: Don't know why it says that, kath, but I just type in the message title and put something like "good info that needs to be shared" in the reason. Then it will BOOM! This is such a well-written message that I would love to see it on the front page.
photo of nanaflower

3 months ago
op, you said everything we all feel on a daily basis, and you did it so very eloquently. Hugs

Boom, Boom, Boom
photo of italianmomma

3 months ago
Well said Ocean! Boom boom boom....
photo of tbubbette

3 months ago
I am booming this & sharing it with my friends in my other groups. I hope that is OK. It sums up perfectly what we deal with on a daily basis. Thanks!
photo of KULPN

3 months ago
Thanks to all of you for your kind words and encouragement. I have just spoken our story, it was easy to describe the brave and caring folks that I have met in this group. I applaud the individual courage each of you exemplify in just getting through your day, and still finding the time to work that drain on your energy one more time, one more push, to help and comfort others.
photo of oceanpagan

3 months ago
Replies 1 - 10 of 13