Message 84 of 544

inflammatory breast cancer

you all have been so nice to me, i thought i would give you a little more insight into my condition and a warning to those who don't know about it. 3 years ago i was diagnosed with inflammatory breast cancer. i had the usual chemo and then a double mastectomy surgery and when i had my first post-op appt with my oncologist he greeted me with, "i'm sorry about your diagnosis, you know this is incurable." it's usually stage 3 before it's ever discovered. i have to have full-body pet scans every 6 months to see where it's gonna pop up next. they say probably bone, brain or liver is most likely. if you want more info watch for "the woman whose breasts turned colors" on Discovery Health's Mystery Diagnosis" or if you are more computer saavy than i, you can probably find it online.
is anyone in a similiar situation? how do you deal with the red flags that pop up with every twinge, ache or bruise? it's like having a time bomb strapped to your back and you can't see the timer.
on a brighter note, i just can't even describe the incredible outpouring of support i have received since i was invited into this group. thank you, thank you, thank you to all of you.
beadawn's profile
Hi beadawn,
Read your post, where do you live? Have you researched the Mayo Clinic as they specialize in inflamatory breast cancer. I sympathize with you for I have had many a sleepless nights if you feel like chating send me a message. I have lung cancer and it is inoperable. boo7301
boo7301's profile

over 2 years ago
boo7301 I too have an "inoperable cancer " mine is in the pleura and I've been in chemo now since Aug 1, 2008. The "tumor" has gone from 9 centimeters to only two but my pulmonologist says they cannot operate on it, and my oncologist says I will probably be in chemo the rest of my life! Where in the lung is yours and what have they told you as to why they cannot operate?
Starofmayaguez's profile

over 2 years ago
Hi beadawn, it is hard to not think of "cancer" with any problem that pops up. It does go away with time if you have no further occurances. If you have a diagnosis that "they" say is incurable that is not easy. The strength of your family and friends will get you through it all. With all they are doing now days even an incurable cancer can be prolonged to give you a full life.

I was diagnosed back in 1986, had a mastectomy first, the a period of healing and several months later they did my chemo. Now things are so much better, drug wise, treatment wise and all.

Any one in this group is hear to listen and give you strength.

Evelyn
Evilannie21's profile

over 2 years ago

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