Lori and the 3rd transplant
Thanks to all for asking about Lori.
She is holding her own and despite problems with dialysis since April, she is a trooper.
2 weeks ago she completed 5 treatments of chemotherapy, used to reduce her antibodies that could potentially attack Sue's ( my sisters) donor kidney.
With each successive transplant the bodies defense against another foreign body/tranplant is creating antibodies which could destroy the donor organ.
This coming week she starts plasmapheresis which is similar to dialysis but seperates plasma etc and again will rule out antibodies. If the lab work she took last week that was sent to Boston Organ Bank for testing comes back that she needs more chemo she will need that too. We are down to one week - the transplant is still set for Monday Nov 23.
My sis Sue (53) came out of church this am and speaking with a parishioner about the tranplant - what comes flying by her face in November was a small orange and brown butterfly! This was indeed a sign as the butterfly has such meaning to us since our brother Bob died in 1990 he was an RN and incredibly smart/world traveled fluent in launguages.
He spoke of the butterfly before he died of AIDS - and each time we saw one and the meaning from him.
She called me this am about this and seeing a car twice with the plates kidney. Sue is the most generous, kind person to all that I have known - she is a genuine gem of a woman I am thankful she is able to help save Lori's life as the doctors said Lori will die remaining on dialysis - she needs the transplant.
So Sue and Lori are all set with the date - and this week of treatments and dialysis 4 x's this week before the tranplant is what's left.
Lori is very nervous as she has had so many surgeries in her lifetime since an infant 1974. It's been a lifelong illness.
Like I tell her and she knows think of the people that there is No hope for - no cure - we always need to be thankful despite adversity.
I will not have access to a computer after Sunday 11/22 before I leave to stay closer to the RI Hospital in Providence. There are some friends from RI whom I've met on the New England group that I will call and they will post for me soon after the transplant is done.
Thank you all for Being there
Chris
PS this is a long post but I had to share Sue's story as well - you can see a pic of Lori and Sue on my profile pics - her laughter and spirit is contagious - we joke that Lori will end up with her jolly laugh! LOL
She is holding her own and despite problems with dialysis since April, she is a trooper.
2 weeks ago she completed 5 treatments of chemotherapy, used to reduce her antibodies that could potentially attack Sue's ( my sisters) donor kidney.
With each successive transplant the bodies defense against another foreign body/tranplant is creating antibodies which could destroy the donor organ.
This coming week she starts plasmapheresis which is similar to dialysis but seperates plasma etc and again will rule out antibodies. If the lab work she took last week that was sent to Boston Organ Bank for testing comes back that she needs more chemo she will need that too. We are down to one week - the transplant is still set for Monday Nov 23.
My sis Sue (53) came out of church this am and speaking with a parishioner about the tranplant - what comes flying by her face in November was a small orange and brown butterfly! This was indeed a sign as the butterfly has such meaning to us since our brother Bob died in 1990 he was an RN and incredibly smart/world traveled fluent in launguages.
He spoke of the butterfly before he died of AIDS - and each time we saw one and the meaning from him.
She called me this am about this and seeing a car twice with the plates kidney. Sue is the most generous, kind person to all that I have known - she is a genuine gem of a woman I am thankful she is able to help save Lori's life as the doctors said Lori will die remaining on dialysis - she needs the transplant.
So Sue and Lori are all set with the date - and this week of treatments and dialysis 4 x's this week before the tranplant is what's left.
Lori is very nervous as she has had so many surgeries in her lifetime since an infant 1974. It's been a lifelong illness.
Like I tell her and she knows think of the people that there is No hope for - no cure - we always need to be thankful despite adversity.
I will not have access to a computer after Sunday 11/22 before I leave to stay closer to the RI Hospital in Providence. There are some friends from RI whom I've met on the New England group that I will call and they will post for me soon after the transplant is done.
Thank you all for Being there
Chris
PS this is a long post but I had to share Sue's story as well - you can see a pic of Lori and Sue on my profile pics - her laughter and spirit is contagious - we joke that Lori will end up with her jolly laugh! LOL
