Message 491 of 2147

Losing a Patient

I have been working with a 58 year old Alzheimer's patient for a couple months now. We grew very close and I so looked forward to going to work everyday just to see her and do things with her.
When I got home today, I got a call from my office. The woman said she hates when she has to make these phone calls, and she knew this one would totally shock me, which it did.
My patient's husband asked them to take me off the case and send a new caregiver. The reason he gave was that I was not keeping his wife active enough.
I'm in such a state of shock right now, because she and I did so much together every day!
I'd get there at noon and we'd take the dog for a long walk (in the heat of the day). Then we'd come back and I'd make her a nice lunch every day. Then we'd vacuum, dust, clean, do laundry and whatever else needed doing.
Then I'd put on my "Dancing with the Stars" cardio workout DVD, which took about 40 minutes to get through. Then we would take the dog out for another long walk (in even hotter heat). Then we'd come back, I'd feed the dog, fold the clothes and give my patient her supplement drink before my shift ended at 5:00 pm.
We also did yard work sometimes, cutting branches and stuff, planting flowers.
I've been wracking my brain all day trying to think how he could even think I wasn't keeping her active enough, unless he was questioning her. She doesn't remember things from one minute to the next, so maybe she didn't remember all we did all day.
I am just devastated and have been crying since I got the call. It's like having a black mark on my perfect record of caregiving and the worst thing is, it is so undeserved. I worked my ass off there. Their foyer was filthy and dusty and I had it sparkling. There was a fake plant covered in dust, and I cleaned every single leaf on it to make it shine. These are things that went unnoticed.
Of course, the worst part is that I am losing my patient who I came to love dearly and I don't understand why.
This has broken my heart. :-(
LkeeperDeb's profile
Replies 1 - 10 of 13
I can relate to how you feel a sense of loss in losing your patient. I know it isn't easy.

Alzheimer's, from what I observed in myself and others around me when I was taking care of my mother, is a disease everyone in the family can share. As a caregiver, I believe it indirectly affected my judgment -- I don't think every decision I made was rational or especially kind, although I tried hard. A couple of times, my wife or my mother-in-law would weigh in with advice, and I was surprised at how often I came to see they were right.

The husband of your patient -- besides his wife, are they the only people in the household? How much stress is the husband feeling? It may be overwhelming, I don't know. I can think of a number of non-rational reasons he'd want someone else there, and you probably aren't really a consideration in his decision making.

You deserved better, and I'm so sorry.

Pax vobiscum.
Wurdguy's profile

over 2 years ago
I can feel your pain because I could feel the love you had for this patient when you posted about her.

It's QUITE possible that the husband asked her what the 2 of you did all day and doesn't understand or is in denial about the fact that she many NOT remember but only a couple of things.

Just be happy you were able to give her some fun times that she could share with somone as kind as you.
RitaRN's profile

over 2 years ago
My experience with Visiting Angels was that the management changed caregivers without reason very often. I would not necessarily believe that the husband asked for someone else - it could be that the husband decided to leave Visiting Angels because of cost and said it was because they wanted a different skills set.
HippyGirl52's profile

over 2 years ago
What H2 said.
Wurdguy's profile

over 2 years ago
Maybe he didn't want his wife to watch any television. I would call, and ask him the reason, saying you would like to know , so you could do better next time. That way you get behind the story, and it relieves you from mulling over the 'why's'.
angelheart's profile

over 2 years ago
No, he did want her to watch "I Love Lucy" tapes every day when I left, so it would keep her occupied until he or his daughter got home from work.
I think he has no idea how grueling it was to take that dog for 2 walks a day in the heat of the day. Being disabled, I know it was killing my back, but I still did it every day with her.

I thought about calling him to ask him why, but we are not allowed to get in touch with them when we've been pulled from the case and I'm just so hurt, I would probably just cry and make a fool out of myself.

As much as I loved being a caregiver, I think I'm going to look for a new job. (Ha, good luck there, right?)
LkeeperDeb's profile

over 2 years ago
Deb -- My mother's caregiver's write in a log book what activities they perform each day so that there is a record. Don't feel that this is a black mark on your record as good caregivers are in great demand and when the husband realizes that he is going to have to settle for "2nd best" he may request your return.
Darrel65's profile

over 2 years ago
Thanks Darrel. I did write him little notes about what we did, but I didn't do it every day. If I stay in this career, I will definitely keep a log with the next patient!!
LkeeperDeb's profile

over 2 years ago
The only reason that Visiting Angels doesn't want you contacting him is they are afraid you will begin working private duty. You can call him - tell him that you are new to the field and would like to know what you could've done so the next time you can do better. Briefly explain your typical day with his wife. If he did say that you didn't keep her active (I doubt it...) - tell him you think his pants are on fire and hang up!?! LOL!
HippyGirl52's profile

over 2 years ago
Way to go HippyGirl! I would say if you are in this career, don't take anything personally and do keep a daily log of everything. Everything happens for a reason, and good comes out of everything.
SpiritSeeker's profile

over 2 years ago
Replies 1 - 10 of 13

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