Message 15 of 213

"pain and suffering"

I was speaking with a friend of mine this morning, a retired oral surgeon, who because of rheumatoid arthritis has been taking large doses of cortisone for many years. Because of this medication he has unfortunately developed severe osteoporosis and last week suffered a compression fracture of a vertebrae. According to him this has resulted in the most severe unremitting and totally incapacitating back pain he ever imagined possible. High doses of opiates offer little or no relief. He ended the conservation by telling me he had "crossed the line." I was not sure what he meant by this and he explained. When people develop physical or mental pain it is lumped together as "pain and suffering." He went on to say this is a false statement. There is a definite line which pain can cross over and become suffering. He had crossed this line and suffering was different from pain. Pain is bearable for humans, suffering is not. I now wonder when my Pat crossed this line. I know Many times I would try to reduce her pain medication because full doses would cause her to become nonverbal and semi responsive. I wanted to be able to relate with her and her pain medication prevented this. I now realize how wrong I was. In retrospect I now understand that she had crossed that line into suffering and by my selfish actions I was making things worse. It is difficult to deal with this now, but I learned too late.
Marty
ophth's profile
We have all either done or thought that we didn't want them to have that much pain medication. I knew once they put the pain pump on my husband that that would be the last time I would be able to talk to him and have him reply back to me. I so wished that they would take it off, but I knew that was the only thing that would make his last days comfortable. Don't beat yourself up about it Marty, we all want to spend every minute that we can with our loved ones. You are not alone. Hugs......Sue
suecitysue's profile

2 months ago
Marty, when we look back all we can do is know that we did the best we could with what we knew. I hope that when you reduced the pain medication not only did it give you some time with your wife, it also gave her some time with you, for all you know she thought it was a fair exchange. I managed my husbands pain meds.......I gave him much more at home than they would at the hospital, but still for the most part he was coherent and with me until the very end. I have no idea how much suffering he endured, he kept telling me it was like a bad toothache, but I know it must have been much worse. He would lose himself in jigsaw puzzles and for some reason it worked well for him, a focus , a retreat, zen, whatever you want to call it. I think of all the things our loved ones would hate for us to do the most, it would be to dwell on what we cannot change, to feel guilt or remorse for actions that were taken only for the sake of love and I think that they absolutely glow when we smile, laugh or just bask in the warm memories of the love and life we shared. I have read many of your posts and your love is evident and it did not die it lives forever in your heart.
Love Ya, Lyn
lyn07's profile

2 months ago
As a nurse, I know that just because someone in non-verbal and semi-responsive does not mean that they are pain free. Sometimes it is better to retain some control and be able to interact with loved ones as long as you can. Many have told me that the pain and/or suffering is more bearable that way.
ameba's profile

2 months ago