HELP at my wits end
over the last six months I have found out how lucky I was to have had the same doctor since 1983, unfortunately my doctor is very ill and has been out for the last five month, and he may never be well enough to return to work. Dr . O understood pain, because he lived in that world also. Over the year through trial and errors we found out that I can take three pain meds. Darvecett n 100's, Demerol, and Delada’s(with four benedrly). Now that I am having to find my a new primary care doctor, none of them seem to understand the pain that I live in constantly. So without proper pain management, my body is not only racked in constant sever pain, but my blood pressure that averaged 130/72 has gone up as high as 220/101. I can’t sleep and when I do I wake myself up crying and screaming for my Mother (died in 1990). The pain has reached the point beyond excruciating to terrifying because of the thought that I have been thinking. I don’t want to live a life where the only thing I can do is cry, and the slightest physical exertion makes the pain beyond believe. I just don’t know what to do. I on the advantage program, but what they can do is limited, I also have been doing physical therapy to try and keep my body from degenerating any more, and I have a nurse that comes out once a week. They have tried to talk to the doctor I found and thought he might be a good one, a big mistake. I just don’t know what to do, or where to turn. All I know is I don’t know how long I can stay with the pain I am in. So please if you have any advice, prayers of just give me a kick in the but. It would be apreciated.
Thanks for listening.
Hi Debra, did your old doctor recommend him? if not, why don't you ask him for a recommendation. I know about all the time pain. I have Parkinson's and my muscles tighten up and send cramps up and down my leg. I will pray for you. No one understands unless he/she has walked in our shoes. I have a motto that I live by and read each morning before I get out of bed. I have a banner. It reads "this day I will not mourn what I have lost but will celebrate what I still have." I've been practicing replying when someone asks me how am I. I tell them it's a good day. It may not be but maybe it will get better. My measuring stick is if I can get up and walk. then it is a good day. God's blessings upon you. Father, I ask you to reach down and give Debra a touch so that she can rest tonight and be able to get up if not pain free, then almost pain free. I know that You can do all things so we trust you to be everything to Debra that she needs. Thank you God for your love. Hillene Deaton
Than you Hellened, your prayer and words of wisdons has helped me. Unfortunaly I can not ask my dear doctor driend, for a referance, he is very ill and is in the Mayo Clinic out East. I think he maybe dying. I know the reason he perscribed adagest pain meds. becaue he too know the hell of living in pain. Please keep praying for me, and I will add you to my list.
I just wrote a huge reply to you but don't see it here. Maybe it takes a while but if you don't get it let me know and I will write again.
So sorry about your situation. I know from experience what you are going thru...hx of back pain and fibromyagia, OA. I was on a pill for muscle spasms before I got cancer...i took it at night so that I would at least sleep. Sleep, for me was the key. Right now I cannot think of the name of that pill (fibrofog and chemo brain!) Loved it and it was cheap and has been around for a long time with minimal side effects; it increased the level of serotonin in the brain and that helps fibro but it does not do it in the same fashion as the anti-depressants. I would like to eliminate my amitriptyline and go back on it. When i think of it I will enter it here for you. Sorry. Now I have a pain patch...duragesic...they give that to me for the cancer pain not the fibro, but it works for fibro too. I also take amitriptyline at night and Dolobid (hydromorphone) as often as I need it. I have been able to taper that down to 3-4 times a day (I used to take it every 2-3 hours.). So, I was in pain before my cancer and now I have excruciating cancer (bone) pain and FINALLY the docs give me whatever I need for pain without restriction! God! I met with a pain specialist who wanted to take me off the Dolobid and put me on Methadone but I refused!! Exercise is important too. Really...gentle stretching and weights...start small and build up. I do elastic bands too. EVERY DAY. After a while the initial pain from exercising will fanish and you will feel better when you exercise. You increase the level of natral pain killers in your blood stream when you exercise and I believe that has some effect on the fibro. Sex does the same thing but can you imagine doing that all day! HA that was a joke! Because laughing also elevates your natral pain killers. Try using your weights (cans at first) while you are watching the comedy channel.
