Message 122 of 413

Lousy Week!

I've just been through a really terrible and scarey week. On Friday, 6/26, my husband who has Parkinsons fell. This is not new, but later in the day he was unable to stand. Last December he had a bladder infection, and pretty much the same thing happened, so of course, that's what I thought was going on this time. After arriving at the hospital, they discovered, l)a urinary tract infection, 2) fluid in his lungs, and 3) a yeast infection. They determined he either had pneumonia or congestive heart failure. He was admitted, and then on Saturday he was complaining that his left leg was hurting, so they X-rayed and found he had broken his hip. Sunday a.m. he had a partial hip replacement. On Tuesday, they discovered a blood clot in his leg, so they put him on blood thinners. He was doing pretty well until Tuesday night when his blood pressure suddenly dropped dangerously low. Since then he has been on dopomine and pretty much out of it. After a couple of really terrifying days, things are starting to look better. There for awhile I was afraid to go to the hospital because it seemed there was always something new to worry about.

Yesterday (Friday) they started reducing the amount of dopomine, and he is a little more aware of what's happening. This is good, but he's also starting to worry. But, last night we had decided to go to McDonalds, and jokingly ask him if we could bring him something, and he nodded his head..(he can't talk because of all the tubes). This was really BIG. We could see some of his personality coming out.

Don't know where all this is headed. I'm pretty sure he will be going to rehab for awhile, but don't know if he will come home or need to go to a care facility. If he comes home, he's going to need care....probably more than I will be able to provide. Will probably be needing some outside help. I'm trying not to worry about that right now. His doctor keeps telling me it's too early to start stewing about anything, and just to concentrate on keeping myself healthy. Right now it's hard to even think about myself. I worry about what's ahead and the bills we will be facing. But for today, we'll just concentrate on getting that fluid off of his lungs. Really need lots of prayer.
megankae's profile
I'm so sorry you're going through this. My prayers and thoughts will be with you both. I'm not yet facing anything so daunting, just fear of more seizures and my hubby's terrible short-term memory loss. Please keep us posted on how your hubby is doing.
lynked's profile

over 2 years ago
I went through a period like this last summer - UTI and sepsis followed by detox, neuro problems and it goes on and on for awhile.

The bills will get paid and the hip will heal and the drugs will reduce and he will improve - honestly.

Promise yourself three things - first, one decent meal a day. That is a balanced, high protien, low carb meal. This is your fuel.

Second, leave the hospital at a set time every night to get 8 hours of sleep. This rest keep you able to go on.

And last, find the hospital social worker and ask friends about how to get help lined up for when he comes home. I am guessing you have a week to get things in place.
HippyGirl52's profile

over 2 years ago
Well today it sounds more like I will have a month to think about those things. When I asked the doctor if he was getting any better, he said no and that he would probably be there for another month. Not the news I was expecting and certainly not the news I wanted to hear. My kids found a hospital bed that they are storing for me, but I'm not sure now if he will ever use it. I imagine a nursing home is what I need to be looking into. My doctor (a different one than the one I talked to today) keeps telling me not to worry about anything except what needs to be done RIGHT NOW! Hard to do, but I'm trying. Did stop at the grocery on my way home from the hospital and bought some real food and am really trying to do a better job of eating and sleeping.
megankae's profile

over 2 years ago
After 3 weeks in ICU, it's all over.....Parkinson's won! Ken passed away at 10:50 p.m. Sunday, July 19. He's now free!
megankae's profile

over 2 years ago
megankae, I'm SOOOO sorry to hear this , PLEASE know you are in our thoughts and prayers during these hard days and weeks ahead.

May God Bless.
Tom & Rita
RitaRN's profile

over 2 years ago
Megankae I share the pain of your loss. I pray that God will grant you and your family a comforter to see you through this period of mourning.
Darrel65's profile

over 2 years ago
My prayers are with you and your family. You've been through so much, my heart goes out to you, stay strong, your husband is at peace now.
finnkid's profile

over 2 years ago
My prayers are with you too. This is what we are all facing, sooner or later. May God comfort you and help you resolve all your problems so that you can move forward with your life. Many blessings.
SpiritSeeker's profile

over 2 years ago
Thank you all for your thoughts and prayers. When they put him in the ambulance to take him to the hospital, I really believed he would be coming home in a couple of days. In fact, our son found and bought a used hospital bed for him to use when he got home. None of us were ready for this.

The funeral was beautiful. Our son gave the most touching eulogy. You just don't realize how many wonderful friends you have until something like this happens. I appreciate you all so much.
megankae's profile

over 2 years ago

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