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Living with Lyme Disease
This group is for all of us who have gone through or living with Lyme disease and the side affects. Those who have had it know how many parts of your life it can affect.
This group would also be helpful if you think you have, know anyone who has, family members or friends who have/had Lyme disease or any of the co-infections.
Lets get together and see if we can help each other.
Recent Messages
Aches!
It seems like there is always some part of my body that hurts. I get up in the mornings and my legs are so stiff and hurt till I walk around for a while. I sit here in the chair for an hour or so and get up with stiff legs/feet.
Sometimes my upper right arm hurts, right now it doesn't.
Back aches if I stand to long. I don't know if this is Lymes or the medicine I take which is Lipitor. I did get Lymes about 5 yrs. ago. Maybe it's old age at 59. Do you think I should have a blood test done for Lymes?
Sometimes my upper right arm hurts, right now it doesn't.
Back aches if I stand to long. I don't know if this is Lymes or the medicine I take which is Lipitor. I did get Lymes about 5 yrs. ago. Maybe it's old age at 59. Do you think I should have a blood test done for Lymes?
Broccoli sprouts for healthy healing
Broccoli sprouts for healthy healing
07/12/08 17:59 Filed in: Diet and Lyme Disease
Fresh organic vegetables, fruits, nuts and seeds are good for you (have you heard?). Raw food diets have been used successfully in curing and easing the pain of many types of chronic illnesses. However, before you fill your plate with only raw ingredients, you should ask your doctor (or better yet, a nutritionist well-versed in Lyme disease) if you're at a stage where eating more raw foods could help boost your healing energy. One naturopath I spoke with advised that during an acute stage of Lyme, raw foods may be too hard for your body to digest. He did suggest that in later stages of Lyme, the enzyme rich foods would be quite beneficial. Sprouts, however, got a big 'thumbs up' at any stage of Lyme.
We're investigating the varying opinions on the benefits of raw food in a healthy healing diet. Since this is such a big subject, let's start small. Consider the lowly sprout. You know how tiny seeds, jammed with nutritious compounds, grow into scrumptious vegetables. Sprouted veggie seeds such as alfalfa, clover, and radish can contain many times the value of the mature veggie.
So which is better for you? Broccoli sprouts or mature broccoli? A study of the tiny, peppery-flavored broccoli sprouts done in 1997 at Johns Hopkins discovered that they contained 20 times more sulforaphane than mature broccoli. Both the sprouts and the fully-grown vegetable (which, by the way, we love steamed with a spot of Bragg's) contain high levels of sulforaphane, a long-lasting antioxidant with anti-bacterial and anti-cancer qualities. Be an organic gardener and grow your own baby veggies. Broccoli sprouts are easy to grow right in your own kitchen. Eat them around their peak of potency -- when they're about three days old.
Whether you go raw or not, it's always a good idea to add more fruits and vegetables to your diet. Eat more broccoli and other cruciferous veggies, in order to benefit from sulforaphane. Write these tasty foods on your grocery list: Bok choy, Brussels sprouts, cabbage, cauliflower, collard greens, kale, kohlrabi, mustard greens, turnip, radish and watercress.
07/12/08 17:59 Filed in: Diet and Lyme Disease
Fresh organic vegetables, fruits, nuts and seeds are good for you (have you heard?). Raw food diets have been used successfully in curing and easing the pain of many types of chronic illnesses. However, before you fill your plate with only raw ingredients, you should ask your doctor (or better yet, a nutritionist well-versed in Lyme disease) if you're at a stage where eating more raw foods could help boost your healing energy. One naturopath I spoke with advised that during an acute stage of Lyme, raw foods may be too hard for your body to digest. He did suggest that in later stages of Lyme, the enzyme rich foods would be quite beneficial. Sprouts, however, got a big 'thumbs up' at any stage of Lyme.
We're investigating the varying opinions on the benefits of raw food in a healthy healing diet. Since this is such a big subject, let's start small. Consider the lowly sprout. You know how tiny seeds, jammed with nutritious compounds, grow into scrumptious vegetables. Sprouted veggie seeds such as alfalfa, clover, and radish can contain many times the value of the mature veggie.
So which is better for you? Broccoli sprouts or mature broccoli? A study of the tiny, peppery-flavored broccoli sprouts done in 1997 at Johns Hopkins discovered that they contained 20 times more sulforaphane than mature broccoli. Both the sprouts and the fully-grown vegetable (which, by the way, we love steamed with a spot of Bragg's) contain high levels of sulforaphane, a long-lasting antioxidant with anti-bacterial and anti-cancer qualities. Be an organic gardener and grow your own baby veggies. Broccoli sprouts are easy to grow right in your own kitchen. Eat them around their peak of potency -- when they're about three days old.
Whether you go raw or not, it's always a good idea to add more fruits and vegetables to your diet. Eat more broccoli and other cruciferous veggies, in order to benefit from sulforaphane. Write these tasty foods on your grocery list: Bok choy, Brussels sprouts, cabbage, cauliflower, collard greens, kale, kohlrabi, mustard greens, turnip, radish and watercress.
Protein and Lyme Disease
I found this article this morning and thought I'd share....
Medical pro explains link between protein and healing
01/08/08 15:13 Filed in: Lyme Disease Treatment
You know it's important to eat protein, but do you know why?
According to Jean Reist, R.N., one good reason to get sufficient amounts of protein in your diet while you're healing from Lyme is to keep your lymph system working effectively. The lymph, or lymphatic system, is a major part of the body's immune system. Protein is necessary for transporting trace minerals through what is known as the extracellular matrix within the lymph system. Imagine the matrix as the white of an egg that's just been cracked open. You don't want it to congeal, as an egg white does in a hot pan, because it would get clogged up with toxins. You want your matrix to stay loose, efficiently transporting nutrients to the cells, and transporting that toxic waste away.
Vegans and vegetarians often eat soy products to boost their protein intake. Yet Reist, who treats Lyme patients in her Pennsylvania clinic, worries that the patients who eat soy may risk getting too much copper in their diets. Soy is high in copper, and evidence suggests that patients trying to heal from Lyme must also get rid of an overload of metals, including copper, mercury, lead and aluminum. She asks her patients to consider eating animal protein such as eggs, fish or whey while fighting Lyme.
Reist observes that vegetarian patients sometimes eat a lot of pasta and grain, which may be easy to prepare, but are high in carbohydrates. She says that for Lyme patients, loading up on pasta and grain instead of protein is not a good idea, for many reasons. For example, the grains wash away magnesium, and she says that Lyme patients tend to have a magnesium deficiency. In addition, carbohydrates drive inflammation, and as you probably are already aware, a big part of overcoming Lyme is fighting the accompanying chronic inflammation.
Medical pro explains link between protein and healing
01/08/08 15:13 Filed in: Lyme Disease Treatment
You know it's important to eat protein, but do you know why?
According to Jean Reist, R.N., one good reason to get sufficient amounts of protein in your diet while you're healing from Lyme is to keep your lymph system working effectively. The lymph, or lymphatic system, is a major part of the body's immune system. Protein is necessary for transporting trace minerals through what is known as the extracellular matrix within the lymph system. Imagine the matrix as the white of an egg that's just been cracked open. You don't want it to congeal, as an egg white does in a hot pan, because it would get clogged up with toxins. You want your matrix to stay loose, efficiently transporting nutrients to the cells, and transporting that toxic waste away.
Vegans and vegetarians often eat soy products to boost their protein intake. Yet Reist, who treats Lyme patients in her Pennsylvania clinic, worries that the patients who eat soy may risk getting too much copper in their diets. Soy is high in copper, and evidence suggests that patients trying to heal from Lyme must also get rid of an overload of metals, including copper, mercury, lead and aluminum. She asks her patients to consider eating animal protein such as eggs, fish or whey while fighting Lyme.
Reist observes that vegetarian patients sometimes eat a lot of pasta and grain, which may be easy to prepare, but are high in carbohydrates. She says that for Lyme patients, loading up on pasta and grain instead of protein is not a good idea, for many reasons. For example, the grains wash away magnesium, and she says that Lyme patients tend to have a magnesium deficiency. In addition, carbohydrates drive inflammation, and as you probably are already aware, a big part of overcoming Lyme is fighting the accompanying chronic inflammation.
Hereis some articles about Lyme I found on-line
Here are some articles of questions and answers I found on-line about Lyme:
FROM -- HealingWell.com Forum > Diseases & Conditions > Lyme Disease > Lyme back after being a year free?
From Moofty
Hey all,
Haven't been on here for a while since my last port-a-cath was taken out last August after a year of IV antibiotics and 11 years of misdiagnoses and all that usual stuff.
I have just gone through some major stress and change in my life and over the last few weeks and my lyme symptoms are all coming back and even the neurological ones.
I am going back to my lyme doctor today to get a western blot done. If it comes back positive for lyme, will I still be able to get further treatment?? My first round of treatment was really bad and so expensive and I lost my marriage because of it during this time as I was so sick for so long and treated with high doses of IV steroids after years of MS misdiagnosis.
I am terrified my lyme is active again after a whole year free : (
Anyone else had this happen?
for responses see reply
FROM -- HealingWell.com Forum > Diseases & Conditions > Lyme Disease > Lyme back after being a year free?
From Moofty
Hey all,
Haven't been on here for a while since my last port-a-cath was taken out last August after a year of IV antibiotics and 11 years of misdiagnoses and all that usual stuff.
I have just gone through some major stress and change in my life and over the last few weeks and my lyme symptoms are all coming back and even the neurological ones.
I am going back to my lyme doctor today to get a western blot done. If it comes back positive for lyme, will I still be able to get further treatment?? My first round of treatment was really bad and so expensive and I lost my marriage because of it during this time as I was so sick for so long and treated with high doses of IV steroids after years of MS misdiagnosis.
I am terrified my lyme is active again after a whole year free : (
Anyone else had this happen?
for responses see reply
Cardamom Treat?
I read this article from December of 2007 and was wondering if anyone else has heard of using Cardamom for Lyme treatment.
Read first reply...
Read first reply...
Diet, exercise and sleep for Lymers
Diet, exercise and sleep
07/22/08 15:37 Filed in: Lyme Disease Diet
Are you like me, a list-maker? Nothing satisfies like crossing something off your to-do list. Here's a list that I wrote for myself, but I haven't crossed anything off yet because I'm still doing them.
See first reply....
07/22/08 15:37 Filed in: Lyme Disease Diet
Are you like me, a list-maker? Nothing satisfies like crossing something off your to-do list. Here's a list that I wrote for myself, but I haven't crossed anything off yet because I'm still doing them.
See first reply....
Doctors seeing more cases of Lyme disease
Doctors seeing more cases of Lyme disease
Vicki Gerdes DL-Online
Published Wednesday, August 06, 2008
See first reply...
Vicki Gerdes DL-Online
Published Wednesday, August 06, 2008
See first reply...
Good Monday Morning!!
How's everyone doing? Did everyone have a good weekend? What have you been doing?
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