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Caregivers
Anyone caregiving for a spouse, family member, elderly parent or friend.
We cover the basics on finding help, how-to's on bathing, food, and life balance. We share some inspirational words. Someone has dealt with your caregiving question before and is willing to help. You'll find support: Someone to take care of YOU or have prayer with... and we are always REAL because we are Caregivers!
Latest group announcement
6 Tips for Caregivers
By Jessica C. Kraft (Beliefnet.com)
Caring for another doesn't mean you should forget to care for yourself. Take good care of yourself, and you'll be able to give your family member the loving care he or she deserves. Follow these tips to make sure you don't neglect your health.
Tip #1: Recognize the Signs of Stress
If you are experiencing irritability, feelings of resentment, loss of sleep, increased susceptibility to colds and flu, or if you feel guilty about taking time for yourself, then chances are that you need to re-evaluate your situation.
Tip #2: Acknowledge the Pressure
Ilana Nossel, M.D., a psychiatrist at Columbia University Medical Center, says, "It's okay to be upset that your loved one is ill and recognize that it takes a toll on you." That's a normal--and healthy--reaction. Nossel recommends reaching out to your own support network and keeping a journal to help you cope, and seeking professional and spiritual advice if you're overwhelmed.
Tip #3: Take a Break
In The Fearless Caregiver, author Gary Berg establishes some ground rules for caregivers. At the top of the list: time away. Meaning you should participate in activities that don't include the person you're caring for. At age 30, Rachel Weber found herself taking care of her ailing father. "You have to take time for yourself," she says, "or you won't be able to help anyone else." Get regular exercise--it's good for your physical and mental health. Stay involved in the activities you enjoyed before your family member got sick.
Tip #4: Ask for Help
Often people who know your situation want to lend a hand, but they don't know how. Ask them to do specific tasks. Tell a friend you could really use a home-cooked dinner on Wednesday, or have a neighbor pick up your family member's medication from the drugstore.
Tip #5: Try Respite Care
Hiring someone to help can reduce the burden on the regular caregiver. It doesn't have to be expensive: Respite care is when someone comes to give you a few hours off, and it's usually covered in part by insurance. If you're anxious about leaving your family member with someone else, make a checklist for the respite worker to understand everything that must be done.
Tip #6: Take Pride in What You're Doing
One way to take pride in what you're doing is to have a goal in mind. Aaron Brodie, a medical student at Hebrew University in Jerusalem, notes that "caregiving goals can motivate you when you feel frustrated or saddened by your loved one's condition. Maybe your aim is simply to enjoy your precious time together, or maybe it's to help him get adjusted to a new medical regimen."
Caring for another doesn't mean you should forget to care for yourself. Take good care of yourself, and you'll be able to give your family member the loving care he or she deserves. Follow these tips to make sure you don't neglect your health.
Tip #1: Recognize the Signs of Stress
If you are experiencing irritability, feelings of resentment, loss of sleep, increased susceptibility to colds and flu, or if you feel guilty about taking time for yourself, then chances are that you need to re-evaluate your situation.
Tip #2: Acknowledge the Pressure
Ilana Nossel, M.D., a psychiatrist at Columbia University Medical Center, says, "It's okay to be upset that your loved one is ill and recognize that it takes a toll on you." That's a normal--and healthy--reaction. Nossel recommends reaching out to your own support network and keeping a journal to help you cope, and seeking professional and spiritual advice if you're overwhelmed.
Tip #3: Take a Break
In The Fearless Caregiver, author Gary Berg establishes some ground rules for caregivers. At the top of the list: time away. Meaning you should participate in activities that don't include the person you're caring for. At age 30, Rachel Weber found herself taking care of her ailing father. "You have to take time for yourself," she says, "or you won't be able to help anyone else." Get regular exercise--it's good for your physical and mental health. Stay involved in the activities you enjoyed before your family member got sick.
Tip #4: Ask for Help
Often people who know your situation want to lend a hand, but they don't know how. Ask them to do specific tasks. Tell a friend you could really use a home-cooked dinner on Wednesday, or have a neighbor pick up your family member's medication from the drugstore.
Tip #5: Try Respite Care
Hiring someone to help can reduce the burden on the regular caregiver. It doesn't have to be expensive: Respite care is when someone comes to give you a few hours off, and it's usually covered in part by insurance. If you're anxious about leaving your family member with someone else, make a checklist for the respite worker to understand everything that must be done.
Tip #6: Take Pride in What You're Doing
One way to take pride in what you're doing is to have a goal in mind. Aaron Brodie, a medical student at Hebrew University in Jerusalem, notes that "caregiving goals can motivate you when you feel frustrated or saddened by your loved one's condition. Maybe your aim is simply to enjoy your precious time together, or maybe it's to help him get adjusted to a new medical regimen."
Recent Messages
Never listen to a sick person...
One of the first things my husband's doctor told me about my husband and his dementia was not to listen to a sick person.
It starts with when you suspect something is wrong and you say "I think I'll call the doctor.." and they say "No, I am fine..." to the nasty, hurtful things that people say.
Part of the reason you have to get through this as a caregiver is that the upper frontal part of the brain where the social filters reside is the area that seems to go first. So, if he gets a thought in his head, he says it without any manners or leveling of degree, etc. Over the years, I have heard it all - believe me...
So I repeat this over and over..."the doctor said it's not him anymore" and I wait for when he looks into my eyes and says thank you or that he loves me, etc... and remember that.
This caregiving is a marathon, not a sprint so you just have to somehow find some humor in it and shake it off or you will be caring for someone that you may love but not like.
This person - your parent - loved you and still does but maybe just can't get over what is happening to them and you are close and get the brunt of it...you may be the only person left that truly cares and puts the caring into action.
Forgive and forget or tell us about it - but let it go.
It starts with when you suspect something is wrong and you say "I think I'll call the doctor.." and they say "No, I am fine..." to the nasty, hurtful things that people say.
Part of the reason you have to get through this as a caregiver is that the upper frontal part of the brain where the social filters reside is the area that seems to go first. So, if he gets a thought in his head, he says it without any manners or leveling of degree, etc. Over the years, I have heard it all - believe me...
So I repeat this over and over..."the doctor said it's not him anymore" and I wait for when he looks into my eyes and says thank you or that he loves me, etc... and remember that.
This caregiving is a marathon, not a sprint so you just have to somehow find some humor in it and shake it off or you will be caring for someone that you may love but not like.
This person - your parent - loved you and still does but maybe just can't get over what is happening to them and you are close and get the brunt of it...you may be the only person left that truly cares and puts the caring into action.
Forgive and forget or tell us about it - but let it go.
Thanks, HG..
...for the six tips in the announcement ... those are great and we do need reminders of those from time to time.
Joy
Okay, we are all in it for the long haul but what do you have that brings you a little joy in your life?
I have the sweetest little yorkie-poo named Teddie. She isn't tiny but only weighs 8 lbs. She is a real cuddly thing and sleeps between my husband and I on the top of the blankets. Good little watch dog. Not a yappy dog (I hate that...)
I bought her for my husband. The doctor said it would help him "stay in the moment" but he tried but didn't like her very much. When she was young she didn't listen to anyone and he lost interest. So she got attached to me and now she is my dog.
She was bred to a champion yorkie and will have puppies in mid-August. I am very excited. We always bred our dogs once before they were spayed so depending on how easy it is and whether the puppies go fast - we will decide to spay or not.
I have the sweetest little yorkie-poo named Teddie. She isn't tiny but only weighs 8 lbs. She is a real cuddly thing and sleeps between my husband and I on the top of the blankets. Good little watch dog. Not a yappy dog (I hate that...)
I bought her for my husband. The doctor said it would help him "stay in the moment" but he tried but didn't like her very much. When she was young she didn't listen to anyone and he lost interest. So she got attached to me and now she is my dog.
She was bred to a champion yorkie and will have puppies in mid-August. I am very excited. We always bred our dogs once before they were spayed so depending on how easy it is and whether the puppies go fast - we will decide to spay or not.
What are you reading?
I know as a caregiver, I wait at the doctors so I bring a book and I always have a book on the nightstand to read. Sometimes, they are about my husband's illness but mostly I read for pleasure and a diversion.
Do you have any books that help you with your caregiving you would recommend?
Do you have any good books that you read for pleasure you would recommend?
Do you have any books that help you with your caregiving you would recommend?
Do you have any good books that you read for pleasure you would recommend?
Three friars
I saw this over on the Irony group and shared it here...
Three friars were behind on their belfry payments, so they opened up a small florist shop to raise the funds.
Since everyone liked to buy flowers from the men of God, the rival florist across town thought the competition was unfair.
He asked the good fathers to close down, but they would not. He went back and begged the friars to close. They ignored him.
He asked his mother to go and ask the friars to get out of the business. They ignored her too.
So the rival florist hired Hugh MacTaggart, the roughest and most vicious thug in town, to "persuade" them to close.
Hugh beat up the friars and trashed their store, saying he'd be back if they didn't close shop. Terrified, they did so, thereby proving that Hugh, and only Hugh, can prevent florist friars.
Three friars were behind on their belfry payments, so they opened up a small florist shop to raise the funds.
Since everyone liked to buy flowers from the men of God, the rival florist across town thought the competition was unfair.
He asked the good fathers to close down, but they would not. He went back and begged the friars to close. They ignored him.
He asked his mother to go and ask the friars to get out of the business. They ignored her too.
So the rival florist hired Hugh MacTaggart, the roughest and most vicious thug in town, to "persuade" them to close.
Hugh beat up the friars and trashed their store, saying he'd be back if they didn't close shop. Terrified, they did so, thereby proving that Hugh, and only Hugh, can prevent florist friars.
Thought for the day
Be faithful in small things because it is in them that your strength lies.
— Mother Teresa
— Mother Teresa
The only song about dementia I can find
Where've You Been by Kathy Mattea
Here are the lyrics:
"Claire had all but given up
When she and Edwin fell in love
She touched his face and shook her head
In disbelief she sighed and said
In many dreams I've held you near
Now at last you're really here
Chorus
Where have you been?
I've looked for you for ever and a day
Where have you been?
I'm just not myself when you're away
He asked her for her hand for life
Then she became a salesman's wife
He was home each night by 8
But one stormy evening he was late
Her frightened tears fell to the floor
Until his key turned in the door
Chorus
They'd never spent a night apart
For 60 yrs she heard him snore
Now they're in a hospital
In seperate beds on different floors
Claire soon lost her memory, forgot the names of family
She never spoke a word again
Then one day they wheeled him in
He held her hand and stroked her hair
In a fragile voice she said
Chorus
Where have you been
Ive searched for you forever and a day
Where have you been
I'm just not myself when your away
I'm just not myself when your away"
Here are the lyrics:
"Claire had all but given up
When she and Edwin fell in love
She touched his face and shook her head
In disbelief she sighed and said
In many dreams I've held you near
Now at last you're really here
Chorus
Where have you been?
I've looked for you for ever and a day
Where have you been?
I'm just not myself when you're away
He asked her for her hand for life
Then she became a salesman's wife
He was home each night by 8
But one stormy evening he was late
Her frightened tears fell to the floor
Until his key turned in the door
Chorus
They'd never spent a night apart
For 60 yrs she heard him snore
Now they're in a hospital
In seperate beds on different floors
Claire soon lost her memory, forgot the names of family
She never spoke a word again
Then one day they wheeled him in
He held her hand and stroked her hair
In a fragile voice she said
Chorus
Where have you been
Ive searched for you forever and a day
Where have you been
I'm just not myself when your away
I'm just not myself when your away"
ARICEPT
My brother, sister and I share caregiver responsibilities for our 92 year old mother. Although she is in a nursing home one of us goes there to visit with her every day.
Our question is about ARICEPT. The doctor started her on 5mg a day in February and then on May 8, 2008 he upped the dosage to 10mg. None of us has seen any difference in her behavior or memory. Around June 8th the nurse at the nursing home called my brother and said they didn't see any change in Mom's behavior and suggested we contact the doctor and have him stop the Aricept. He said, "That is a resonable request and has ended the prescription." This medication is very expensive!
We are wondering if anyone has had experience with this medication or has any first hand knowledge about it?? I posted this similar commentary on another site but have had no response.
Thank you for all the care and share you do on the site!!! I feel that this very GREAT therapy for all of us who meet here daily. GOD BLESS you all and those you care for.
Our question is about ARICEPT. The doctor started her on 5mg a day in February and then on May 8, 2008 he upped the dosage to 10mg. None of us has seen any difference in her behavior or memory. Around June 8th the nurse at the nursing home called my brother and said they didn't see any change in Mom's behavior and suggested we contact the doctor and have him stop the Aricept. He said, "That is a resonable request and has ended the prescription." This medication is very expensive!
We are wondering if anyone has had experience with this medication or has any first hand knowledge about it?? I posted this similar commentary on another site but have had no response.
Thank you for all the care and share you do on the site!!! I feel that this very GREAT therapy for all of us who meet here daily. GOD BLESS you all and those you care for.
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