(This is the end of the story that inspired the blog I wrote titled "The "H" Word)
Getting Arthur comfortable was more work than I anticipated. He cried out for help more often than I wanted. The liquid morphine was not doing enough. The Hospice nurse came out and assessed him this morning. She called the doctor, who ordered a Fentanyl patch, Valium, and Xanax. When I came by to see him this afternoon, those medications had not arrived yet. Arthur was moaning and calling for his mother. I called the Home Infusion Pharmacy and spoke to my friend, Pete. He checked on the status of the doctor’s orders, and then drove the medications out to the house himself. Pete is not one of the pharmacy drivers; he is a pharmacy tech and a caring human being.
I instructed the caregivers in crushing the Valium, putting it in water, and using a dropper to place the liquid concoction under Arthur’s tongue. It is very vascular there, insuring fairly quick absorption of the medication, and decreasing the chances that he would choke on it.
By the time I left, an hour and a half later, Arthur was finally comfortable. I had shown the caregivers where to place the pain patch. We also gave him a full dose of morphine; his son has been giving him a quarter of the full dose because he believed, mistakenly, that “he’s not really having pain.” I instructed the caregivers again about how much morphine to give and how often. We repositioned him, put on a clean gown, and straightened up his sheets. I hugged Cathy and Theresa, the caregivers, and left.
Now, some 3 hours later, I received the call I was waiting for: Arthur is gone. His pain and suffering are over. Cathy and I cried on the phone. I will not go back to the house as I have already said my goodbyes. The Hospice nurse is on her way to assist the family with the final arrangements.
I am grateful that I was able to play some small part in the end of his life. I am also drained, and sad, and in need of some rest. Some thoughts have been going through my head for the past few days. I would like to share them with you:
*If you’re living with terminal illness, make plans for your death, and then live your life to the fullest.
*If you’re healthy, and death is not even on the radar screen, live your life as if your tomorrows might not happen, because they might not.
*If you love someone, tell them, you may not have another chance.
*If you are grateful for some small kindness, say thank you, then pay it forward.
*If things are not right between you and someone you love, do what you have to to fix it; if you can’t, find peace with what has to be.
*If you are afraid of loving, love anyway. To love and lose is sad, to never take a chance on love is a tragedy.
*If you are apart from the one you love, pull them into your arms. Being apart is painful; never being together is unbearable.
*If you want to do or say something important to a loved one, do or say it. The consequences should not predicate the expression of one’s feelings.
*Live with caution. Love with abandon.
*Open your heart to the joy in this world.
*If you find love, you will find life.
To my Arthur: via con Dios, mi amor!
To the rest of you: Live, Love, Laugh! It’s all we have.
I wish you peace of mind, joy, and, most of all, no regrets!
And So It Ends
posted 3 months ago
Comments
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- 1. 3 months ago Marit0129 wrote:
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It is the second time today your words have given me peace, for that I am most profoundly grateful. Thanks Cali.
- 2. 3 months ago IrishRose2007 wrote:
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Thank you very much for writing this account, Cali - despite your professionalism, I know it must have been painful - but please know that it was worth every difficult word - I am a cancer survivor and I have a friend who is now terminal and in hospice care - along with your original piece on this subject, this has helped to increase my knowledge as to what to expect at the end of life for those of us who will or might die from cancer. I am truly grateful that you were willing to share this experience with us.
- 3. 3 months ago CaliforniaBlonde wrote:
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Thank you both for you kind comments. I shared this story, and "The 'H' Word" hoping that they would touch someone else and make a difference in another life. Thank you for letting me know that I was able to help you. I am humbled, and thankful for the experience. My best wishes to you both.
- 4. 3 months ago onetoejeff wrote:
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I don't know how you do it day in and day out Cali. I don't know how many people you have seen pass on.
I know you and I know your heart. I have one like yours myself. I know you take comfort in providing comfort for your clients whom I know become people you care for.
But to deal with that on a daily basis I know I would become a wreck.
You gave me food for thought again and I will think. Damn I hate thinking..
- 5. 3 months ago CaliforniaBlonde wrote:
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Thank you for your kindness, Jeffry! It is hard sometimes but, this is what I am supposed to be doing with my life.....I truly believe that!
Yes, my patients are like extended family.......they become part of me and I become part of them. The emotional price is high, the rewards are worth it!
You know my heart, and I know yours!
Cali
- 6. 3 months ago lynnly wrote:
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Your story brought tears to my eyes. I have to say though that the thoughts that you listed really touched me. You are so right. Many times, those are things that we don't think of, and I am so glad that you listed them. Truly food for thought and words to live by. You are truly an angel who works so hard and shows such compassion. I am sure it takes a great emotional toll on you. You are an inspiration.
- 7. 3 months ago Dave48 wrote:
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Thank you Cali....I went to visit my mother, and the day after I had to leave, she passed...my father died, and I was not there...I would like to think that they both had someone like you to help them through. Thank you again.
Dave
- 8. 3 months ago knigo2 wrote:
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Lovely my sister...I will share with Diane..
- 9. 3 months ago CaliforniaBlonde wrote:
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Thank you, everyone, for your comments! It is a new day, and I feel good about what I was able to do for Arthur. He is at peace now and I will remember him fondly for the rest of my life!
Cali
- 10. 3 months ago TestofF8th wrote:
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Thank you for the follow up. The fact that his son was unable to recognize the pain his father was enduring only strengthens the value of hospice care, or perhaps he just wasn't ready to let go and was afraid the morphine would only speed up the inevitable.
Your closing thoughts are something worth saving. They are for today and tomorrow. Rest in peace, Arthur.
- 11. 3 months ago CaliforniaBlonde wrote:
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Thank you for your kind words. And for the opportunity to revisit the pain issue and the son: he was doing what he thought was right and, when I gave the larger dose, and he saw his father comfortable, he felt badly. I reassured him that I knew he was only doing what he thought was right, and it was okay. I spoke to the son yesterday, he is handling things as well as can be expected. He will be okay.
