Invisible Disabilities: view link
Those that don't suffer from an ID, don't understand, and lets face it, they CAN'T understand us. We can try to explain it, but until they have walked a mile in our shoes, so to speak, they will never know the devastation, that ID's wreak upon our lives.
For instance, i suffer from being bipolar, but am mostly familiar with the depressive side of it. When i go into a "manic" phase, and feeling "up", i have problems dealing with it. Others see me then as just a normal person, that is happy. They don't understand, that, for me at least, it ISN'T "normal".
I also suffer from chronic pain, mainly in my lower back, and in my hips. Both hips are artificial. Much of the time, i can put on a brave face in public, and can walk okay. But there are times, that i have to use a cane, or even a walker, to get around. My acquaintances don't understand how i can be fine one moment, and the next i have tears in my eyes, and using one of these devices. They don't/can't understand why i don't pick something up right away, if i should drop something, and i think they see me as uncaring, or unfeeling, or just plain lazy.
I'm also noticing that sometimes my hands "lock-up", which i'm pretty sure, is a sign of arthritis.
Also have heart problems, i've had a heart attack, and a quadruple bypass, several years ago. I feel tired alot, and get winded very easily. Others don't understand, as i look fairly healthy.
Sometimes i get very anxious, and have had several panic-attacks. More about panic attacks:
view link
I have to get away from people, very quickly. Others just don't seem to understand, and think i'm being rude, when i just "disappear".
I like to attend church services, but sometimes i am afraid to go, as i ride their van, that they send to pick people up. It is always full, and i am afraid that sometime i will have a severe panic attack. I always try to arrange to sit near the front, and by a door if at all possible. So far, it's all worked out, and i've been able to do those things, w/o having to explain why.
No, i'm NOT afraid of what they would think of me. I am afraid tho that i could hurt someone, 'cause i do get real "edgy". I guess this is what is considered to be claustrophobia.
The mind wants to do so much, that my body just doesn't let me do anymore.
I do try to keep a sense of humor about all these things.
I don't consider myself to be a "whiner", that's why most people don't have a clue as to what is going on inside of me.
Just consider these things tho, 'cause, maybe that "healthy-looking" person, that you are so frustrated with, at the moment, really isn't all that "healthy", after all.

posted by moondancerinred
Write in Guestbook
posted by Marit0129
Write in Guestbook
posted by grammyjessy
Write in Guestbook
posted by Skye60
Write in Guestbook
posted by hippiemama
check on the hand lock, that is a sign of spinal damage, pain (ache) and stiffness is arthritis, but lock up, is usually spinal. see what you can do befor it gets worse.
all that said, i dont get how people can not understand. the spine and hip can be very fickle. one minute i am hiking, the next i need a cane. try explaining it to them, give them a chance. the panic attacks can be controlled. i do it, by staying out of the situation. i dont go in elevators, and i dont go in crowded vans. try asking the minister, if he could find another way for you. i used to live in nyc, the panic attacks forced me out. i live in the country now, and it works. you just need your space, thats all, and you can handle it. cant help with the bi-polar, but do suggest you find a group that is expert at it. they really do help. if nothing else, you are around people that get it. most hospitals have support groups. its worth a try.
all the best for ya, justa
jesse
Write in Guestbook
posted by BettiAnne
Write in Guestbook
posted by lolomeowsie
Write in Guestbook
posted by OKScissortail
Thank you for sharing your thoughts and feelings. I am one of those who can be judgmental -- but I'm working on it all the time. Just from my side of the problem it would help if an acquaintance of mine was having these difficulties if he/she would share a little about the trouble with me/our friends. We don't need or demand a lot of details, but if you don't know a person suffers with, say, depression, then how am I to respond to the non-standard behavior or understand what is driving you to sit at the front of the bus, etc.
I know that exposing yourself in this way is very difficult. I am working on becoming more transparent also and I really still try to hide my faults and things that are a part of me but different from others.
Again, thank you for sharing. I will give a lot of thought to your words.
Write in Guestbook
posted by geda
Anyway, I just want to say I'm praying that your spirits will be lifted out of that dark place. You seem like such a nice guy, and you have lots of online friends, so don't be afraid to reach out to all your friends and family. I think you're like me and don't ask for help, but I'm learning, and I hope you are too.
Take Care, and Be Well........Your friend Sheila
Write in Guestbook
posted by venesmarie
Write in Guestbook
posted by Makkadawn
Write in Guestbook