On Monday, a new nurse named Maria came by to admit Albert into the Hospice. The last time, the nurse was not warm and friendly but this time, we sat together and talked about my husband's history and she seemed genuinely interested in what could make my life and the end of his life easier.
I knew that the furniture needed to be changed over to the Hospice suppliers and we went through a few tries to get the "right" bed. The new-used bed is heavy to move and is cutting grooves in my carpeting in the bedroom every time I move it. A new rolling shower chair already helped us. The wheelchair was good. A new circulating air mattress is in place and this low humming is like bees are in the bedroom at night.
My husband has changed already. He sleeps a lot and is eating less. When I hug him - he is all bones and he likes to be held close. He had a runny nose and a little cough and I was on pins and needles that it would turn to pneumonia and kill him - yesterday.
I find I am very anxious and I must have a subliminal idea of when I think it would be okay for his life to end and it is not today. And I know if he suddenly died...ahead of my "acceptable" schedule...I would be a mess so I am trying to get some "things" done.
This weekend, I hope to get my 2008 taxes done and into the CPA Monday, for instance. I filed the extension and now the bank wants to see the numbers for a re-finance I am doing on our house. No more waiting! I literally have a 10 inch stack of medical deductions to add up from last year. Ugh!
Some of the Hospice people are new and some were here last time but when someone is really dying and it is not palliative care - it is different. My husband is tired and I have lost my mojo. They come and go, checking his vitals and asking about his eating and drinking. They are seeing where he is in the "process."
I am ashamed to say right now, it doesn't matter to me. The die is cast when his living will took over and when I signed Monday for comfort measures - my hopes and dreams for our life together died that day. Now, I am just trying to make sure that this part of his life is gentle and I can let go when the time comes.



posted by joy333
I am definitely interested in hearing from you and will subscribe to your blog. Understanding....Joy
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Ina
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posted by TestofF8th
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posted by Barbiegurl53
"Sea-Fever"
I must down to the seas again, to the lonely sea and the sky,
And all I ask is a tall ship and a star to steer her by,
And the wheel's kick and the wind's song and the white sail's shaking,
And a grey mist on the sea's face, and a grey dawn breaking.
I must down to the seas again, for the call of the running tide
Is a wild call and a clear call that may not be denied;
And all I ask is a windy day with the white clouds flying,
And the flung spray and the blown spume, and the sea-gulls crying.
I must down to the seas again, to the vagrant gypsy life,
To the gull's way and the whale's way where the wind's like a whetted knife;
And all I ask is a merry yarn from a laughing fellow-rover
And quiet sleep and a sweet dream when the long trick's over.
By John Masefield (1878-1967).
(English Poet Laureate, 1930-1967.)
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posted by HippyGirl52
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posted by Chitownbarb
When we put my mom in Hospice in 2004, it was tough but when you look at what a person is going through and see no quality of life, I believe it makes it easier to know that there will soon be no pain and suffering for the person you love so much. When my mom did pass on, I felt a wave of peace come over me. We were with her and it was peaceful and calming. At her wake, I had made up cards with her picture on the front and the lyrics from "Keep Me In Your Heart" by Warren Zenon. He wrote this to his fans and sang it before he passed on from I think Lung Cancer. Here are the words. I had the music played at her funeral before we left for the church.
Maybe you can find some peace in these words just as I did.
Shadows are falling and I'm running out of breath
Keep me in your heart for awhile
If I leave you it doesn't mean I love you any less
Keep me in your heart for awhile
When you get up in the morning and you see that crazy sun
Keep me in your heart for while
There's a train leaving nightly called when all is said and done
Keep me in your heart for while
Sha-la-la-la-la-la-la-li-li-lo
Keep me in your heart for while
Sha-la-la-la-la-la-la-li-li-lo
Keep me in your heart for while
Sometimes when you're doing simple things around the house
Maybe you'll think of me and smile
You know I'm tied to you like the buttons on your blouse
Keep me in your heart for while
Hold me in your thoughts, take me to your dreams
Touch me as I fall into view
When the winter comes keep the fires lit
And I will be right next to you
Engine driver's headed north to Pleasant Stream
Keep me in your heart for while
These wheels keep turning but they're running out of steam
Keep me in your heart for while
Sha-la-la-la-la-la-la-li-li-lo
Keep me in your heart for while
Sha-la-la-la-la-la-la-li-li-lo
Keep me in your heart for while
Keep me in your heart for while
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posted by ChefJan
~Cheffie~
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